ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with POTS; midodrine opened four-hour windows of function
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
POTS component of CFS/ME
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Eagle 17387 had CFS/ME with a POTS component and credited midodrine with opening a window of about four hours of real functionality per dose, including work, shopping and mild exercise. They said this was sustainable for years and that they could cope with international travel while taking it. They described midodrine as a stimulant of sorts.
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What they tried
Also tried
Their words about each treatment
- midorine · Helped a lot
each dose opened a window of about 4 hours of real functionality (work, shopping, mild exercise) sustainably for years. ... I was even able to cope with international travel while on it.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | CFS/ME with POTS componentfor the POTS component of CFS/MEIn context ↗ | Not stated | |
| 2023-02-03 | started midodrine and gained four-hour functional windows for years; could travel internationallyWhen I started on midorine for the POTS component of CFS/ME each dose opened a window of about 4 hours of real functionality (work, shopping, mild exercise) sustainably for years.In context ↗ | Mild | Midodrine |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
POTS component of CFS/ME
In context ↗