Miruvor

Midodrine

8 people describe trying Midodrine (7 with ME/CFS, 1 with long COVID).

38%
recovered fully or nearly
3 of 8
50%
improved (substantial or partial)
4 of 8
12%
relapsed
1 of 8
0%
no benefit
0 of 8

How it went

Did it last?

  • 2 of 8 said the benefit wore off (including the 1 who relapsed).
  • No one said they needed to keep it up to stay well.

Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.

Outcome describedAccountsShare
Full recovery225%
Near-full112%
Substantial338%
Partial112%
Relapsed112%
No benefit00%

Only 8 accounts. Treat these percentages as anecdotes, not rates.

By how ill people were

Severity at worstHow it wentnRecovered
Severe540%
Very severe250%

1 accounts don’t say how ill the person was.

Who published these accounts

Sells a treatment or program4 accounts
75%
Independent (blog, forum, news)4 accounts
0%

50% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.

All 8 accounts

  • Hyperbaric Oxygen Therapy Turns Mathew's Long COVID / ME/CFS / POTS Around

    Full recovery ME/CFS SevereIll 4 years healthrising.org · sells Dec 2024

    Mathew developed long COVID with ME/CFS and POTS after a COVID infection in February 2020 and cycled through severe crashes for four years, at times 20 hours a day in bed, despite midodrine, low-dose naltrexone, Abilify and Paxlovid. In late 2023 he…

  • Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the Rest

    Full recovery ME/CFS Very severeIll 4 yearsEffect faded healthrising.org · sells Jun 2024

    Dr Mathew Robinson, a university professor, developed long COVID with ME/CFS and POTS after infection in February 2020 and spent 20-22 hours a day in bed. Midodrine, low-dose Abilify and low-dose naltrexone under Bateman Horne Center care brought him to…

  • Daughter's recovery details

    Substantial ME/CFS SevereIll 2 years forums.phoenixrising.me · sells Jul 2023

    The regimen for Celandine's daughter included daily liquorice root powder and salt in plant milk, weekly-then-tapering Perrin Technique osteopathy (including breast lymphatic massage), the POTS medications ivabradine and midodrine with salt tablets and 2…

  • Impact of extended-course Paxlovid in established Long COVID (Case 7)

    Relapsed Long COVID SevereIll 11 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…

  • My 4th Year; EBV, ME/CFS, Long Covid; Pacing, HBOT, Vedicinals

    Partial ME/CFS SevereIll 4 years jenniejacques.com Sep 2022

    Vedicinals-9, taken short-term as a nutraceutical supplement alongside an organic diet. She had been ill for four years at the time of writing, with EBV-triggered ME/CFS overlapping long COVID, managing dysautonomia with pyridostigmine and midodrine plus…

  • Mayo Protocol plus Venofer Iron Infusion Helps Teenager Recover

    Near-full ME/CFS SevereIll 1.67 years healthrising.org · sells May 2016

    A teenager named Jack developed ME/CFS and POTS with an acute flu-like onset and was mostly homebound for about 20 months, as told by his father. Mayo Clinic's POTS rehabilitation protocol, Venofer iron infusions for low ferritin, midodrine, salt and water…

  • how did you get out of "bedridden level" ??(even if you are still sick)

    Substantial ME/CFS Very severe forums.phoenixrising.me May 2015

    Reports going from bedridden to walking a mile and a half the next day after starting Florinef, Midodrine and a beta-blocker for orthostatic symptoms. Frames it as trial-and-error ("the trick is to try things") with no dose, duration or durability detail given.

  • 3 Things that Help the Most!!

    Substantial ME/CFS forums.phoenixrising.me Nov 2011

    Manages orthostatic intolerance with midodrine, fludrocortisone, time-released potassium, salt tablets, 3 liters of water a day, deliberately reclining to rest, and a folding cane/stool for standing tasks. Says this combination substantially improves her…