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ME/CFS Moderate → no benefit

Largely housebound with ME/CFS; yoga nidra gave no improvement, left them anxious

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
May 2026
In their words
  • Condition: ME/CFSI am currently pretty much housebound from ME. In context ↗
  • At worst: ModerateI am currently pretty much housebound from ME. ... I also have POTS so I spend most/all of my time lying down In context ↗
  • Now: No benefitI am currently pretty much housebound from ME. In context ↗
  • Began after: stress or burnoutPhysical and emotional trauma and malnutrition throughout childhood.
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

An 18-year-old with ME was largely housebound, lying down most of the day because of POTS, with chronic migraine with aura triggered by noise, socialising and overstimulation, plus hypersomnia. They linked the illness to childhood trauma and malnutrition, with ME symptoms unmasked when they began weight-restoring from anorexia. Yoga nidra recommended by an occupational therapist left them agitated and anxious.

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What they tried

Their words about each treatment
  • yoga nidra / NSDR / guided meditation · WorseNSDR/yoga nidra/guided meditation have been making me more agitated and anxious In context ↗
  • pacing · Not saidI regularly don’t rest or pace when I should In context ↗
  • weight restoring · WorseWhen I began “weight restoring” from my anorexia as an adult it “unmasked” the ME symptoms that had been waiting to come out In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—ME symptoms unmasked after weight restoration from anorexiathe ME symptoms that had been waiting to come out but were suppressed during the malnutrition In context ↗Not stated
2026-03-19largely housebound, lying down most of the dayI am currently pretty much housebound from ME. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI also have POTS so I spend most/all of my time lying down In context ↗
  • Headaches & migraineI have chronic migraines with aura which are caused by overstimulation In context ↗
  • Light & noise sensitivitylistening to music, listening to talking without being able to lipread (eg. Podcasts), loud noises In context ↗
  • Sleep problemsI’ve got hypersomnia apparently so I’m supposed to not sleep any more than I do already. In context ↗
  • Neuropathy & tinglingsomething to do with numbness and pain and nerve damage In context ↗

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