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Long COVID Moderate → no benefit

Often couch-bound with long COVID; steroids gave brief relief, no lasting benefit

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jun 2022
In their words
  • At worst: ModerateNow with Covid symptoms keeping me out of the gym and couch bound on many days, those pains are back in full force. In context ↗
  • Now: No benefitWhen my symptoms go into remission, they come back and this year have been in 6 week and 8 week stretches of really bad. In context ↗
Read from 12 of their posts and comments; links to the 7 this page draws on

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Summary

Cardinal 75375 developed neurological symptoms and tinnitus in April 2020 and never tested positive, plus dizziness and headaches, with exercise worsening them; they were couch-bound many days. Dexamethasone and prednisone briefly eased symptoms but never lasted, and dexamethasone caused violent hiccups. The second and third vaccine doses made them fluish, the second worse and lasting a day. Their symptoms fluctuated and had worsened by late 2021.

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What they tried

Their words about each treatment
  • exercise at the gym · WorseIn last 2 months exercise exacerbates the tinnitus and dizziness/ lightheadedness and exhaustion. In context ↗
  • Supplements · No changeSupplements, everything. Nothing helped. In context ↗
  • dexamethasone · HelpedDexamethazone helped for a short period of time but never lasts. In context ↗
  • Prednisone · Not saidIt seemed to have worked better than Prednisone which my new doctor gave me. In context ↗
  • PT, weights and cardio · HelpedPT, weights and cardio killed all the pain. In context ↗
  • Treximet · No changeTreximet worked on my migraines I had for years until they pretty much went away in 2014 or so. In context ↗
  • rizatriptan · HelpedI’ve used rizatriptan which helps sometimes. In context ↗
  • COVID vaccination as treatment · Not saidThe 2nd and 3rd dose made me fluish, the 2nd being the worse but lasted a day. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
August-December 2020neurological and tinnitus symptoms subsided a bitsubsided a bit Aug-Dec In context ↗Not stated
January 2021inner ear disease (neuritis/Meniere's) hit and worsenedneuritis/menieres hit in January—diagnosed last month In context ↗Not stated
November 2021symptoms getting worse; couch bound on many days, out of the gymand has gotten worse through now In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • TinnitusIn last 2 months exercise exacerbates the tinnitus In context ↗
  • POTS & dysautonomiadizziness/ lightheadedness In context ↗
  • Headaches & migraineI can have sharp headaches and dull headaches for days. In context ↗
  • Post-exertional malaiseexercise exacerbates the tinnitus and dizziness/ lightheadedness and exhaustion In context ↗
  • Neuropathy & tinglingthose pains are back in full force In context ↗
  • Gut problemsNo reoccurrence of early GI issues. In context ↗

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