Long COVID
No benefitNeeds ongoing treatment
Long COVID gut dysbiosis and severe burning skin, no progress on fiber and probiotics
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: Long COVID
r/Longcovidgutdysbiosis
In context ↗ - Now: No benefit
Zero progress after 4 months. Same amount of bloat and gas but I have not used any anti-microbial yet.
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
A person with long-COVID gut dysbiosis reports low butyrate and SCFA, a methane-positive SIBO test, severe burning skin with mast cell and histamine problems, deep bone pain and panic attacks. Four months of fiber, lactulose, PHGG and Visbiome brought zero progress, and more fiber and cold rice worsened bloating and gas. They take lipothiamine, riboflavin, butyrate and ketotifen, and say they would not still be here without ketotifen.
Ask Miruvor AI
What they tried
Also tried
Ketotifen· Helpedlactulose· No changePerfect Pass PHGG· No changeVisbiome· No changeantibiotics· Worseresistant starch· Worseincreasing fiber including cold rice· WorseHoligos· Not saidlipothiamine· Not saidRiboflavin· Not saidButyrate supplements· Not said
Their words about each treatment
- antibiotics · Worse
I fear antibiotics have permanently destroyed some necessary microbes.
In context ↗ - resistant starch · Worse
when you first started the resistant starch? ... I get an increase
In context ↗ - increasing fiber including cold rice · Worse
I tried increasing fiber including cold rice and I did it slowly but got worse.
In context ↗ - lactulose · No change
lactulose and PHGG as well as Visbiome ... Zero progress after 4 months
In context ↗ - Holigos · Not said
I have started a product for FUT2 people called Holigos
In context ↗ - Ketotifen · Helped
If I didn't have the Ketotifen I don't think I'd still be here.
In context ↗ - lipothiamine · Not said
I've been taking 50mg lipothiamine and at least 100mg Riboflavin, both because my NutrEval in the past had shown I was low.
In context ↗ - Riboflavin · Not said
at least 100mg Riboflavin, both because my NutrEval in the past had shown I was low
In context ↗ - Butyrate supplements · Not said
I had stopped grass fed butter due to cardio issues (mistake) but now take Butyrate supplements.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | onset of long-COVID gut dysbiosis, burning skin, bone pain and panic attacks (trigger not stated)Badly burning skin (all over but arms worst) with mast cell and histamineIn context ↗ |
| 2025-02-11 | increasing fiber, including cold rice, made gas and bloating worseI tried increasing fiber including cold rice and I did it slowly but got worseIn context ↗ |
| 2025-02-11 | still low butyrate and SCFA, same bloating and gas, no antimicrobial tried yetSame amount of bloat and gas but I have not used any anti-microbial yetIn context ↗ |
Adverse events
- Resistant starch“Did you get an increase in gas, bloating and digestive noise when you first started the resistant starch? I get an increase.” In context ↗ Gut side effects
- “Eating more fiber causes more gas and bloat.” In context ↗ Made symptoms worse
- “I tried increasing fiber including cold rice and I did it slowly but got worse.” In context ↗ Made symptoms worse
- “but as I said the more I ate the worse the gas and bloat” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodGut problemsHeart symptoms & palpitationsMast cell (MCAS) & allergiesPain & fibromyalgia
Their words about their symptoms
- Mast cell (MCAS) & allergies
Badly burning skin (all over but arms worst) with mast cell and histamine
In context ↗ - Gut problems
Same amount of bloat and gas but I have not used any anti-microbial yet
In context ↗ - Pain & fibromyalgia
I had deep bone pain too
In context ↗ - Anxiety & low mood
I also get a panic attack
In context ↗ - Heart symptoms & palpitations
I had stopped grass fed butter due to cardio issues
In context ↗