ME/CFS
Moderate → somewhat betterIll 4 years before improving or writing
Unable to work 2.5 years with ME/CFS, somewhat better; L-theanine and melatonin aid sleep
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I don’t know if my CFS was caused by COVID.
In context ↗ - At worst: Moderate
I rested and did absolutely nothing for years. I was at my absolute lowest
In context ↗ - Now: Somewhat better
I still struggle but I’m doing better than I was a few years ago.
In context ↗ - Began after: COVID
nearing the end of 2020 is when I officially crashed for good makes me think that it was triggered by COVID
Summary
Orchid 28739 crashed for good at the end of 2020, suspecting COVID triggered it, and could not work for 2.5 years, resting and doing nothing. Since returning to full-time work they have had no energy for anything outside the job, and after four years they had never come close to 50% better. A naturopath found reasons for the fatigue and digestive issues, and L-theanine and melatonin improved sleep while saffron seemed to help mood.
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What they tried
Also tried
light exercise· Helped · wore offL-Theanine· Helpedmelatonin· Helpedsaffron· Helpedtherapies paid out of pocket· No changerested and did absolutely nothing· Not saidnaturopath plan· Not saidwelbrutin· Not said
Their words about each treatment
- rested and did absolutely nothing · Not said
I rested and did absolutely nothing for years. I was at my absolute lowest
In context ↗ - therapies paid out of pocket · No change
I had to continue to pay out of pocket for so many therapies and such that did nothing
In context ↗ - light exercise · Helped
I’m working full time again and actually want to do light exercise and have been able to keep it up for a month or so now.
In context ↗ - naturopath plan · Not said
she recommended a bunch of blood tests ... Starting on a plan to heal that now, so hopefully it helps.
In context ↗ - L-Theanine · Helped
now sleep so much better that I take 200mg of L-Theanine and 5mg of melatonin
In context ↗ - saffron · Helped
Saffron is helping with depression I think.
In context ↗ - welbrutin · Not said
I’m also on welbrutin though.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| end of 2020 | crashed for good; suspects COVID triggered itthe fact that nearing the end of 2020 is when I officially crashed for good makes me think that it was triggered by COVIDIn context ↗ |
| 2021 to mid-2023 | rested and did nothing for years; could not work for 2.5 yearsI rested and did absolutely nothing for years. I was at my absolute lowestIn context ↗ |
| 2024-02-15 | working full time again and able to do light exercise for a monthI’m working full time again and actually want to do light exercise and have been able to keep it up for a month or so nowIn context ↗ |
| 2024-10-09 | full-time work leaves nothing; crashes every few weeksafter 1.5 years of working full time it’s been hell ... I can’t do anything in my spare time but the bare minimumIn context ↗ |
| 2024-10-27 | naturopath plan started; sleep much better on L-theanine and melatoninI had the worst insomnia and now sleep so much better that I take 200mg of L-Theanine and 5mg of melatoninIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Normally after one work out I’d have to rest for weeks/months.
In context ↗ - Brain fog
The fatigue and brain fog are so bad I honestly don’t know how I make it through each work day
In context ↗ - Sleep problems
I had the worst insomnia and now sleep so much better
In context ↗ - Gut problems
have bad digestive issues
In context ↗ - Anxiety & low mood
Saffron is helping with depression I think
In context ↗