Bedridden with ME/CFS, unable to walk or leave home, no treatment for CFS
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 10 years
- Last post
- May 2024
In their words
- Condition: ME/CFS
bedridden with cfs
In context ↗ - At worst: Severe
I can barely walk, debilitating brain fog 24/7, unable to even concentrate, struggle to shower etc
In context ↗ - Now: No benefit
I am no longer able to walk or leave my home.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Ridge 36971 had had CFS for over ten years and was bedridden, barely able to walk, with constant debilitating brain fog and difficulty showering. They had stopped working and had not seen a doctor for four years. A jury summons around six years earlier, requiring hours of sitting up, destroyed them; they drank caffeine and had severe palpitations and blackouts. By 2024 they could no longer walk or leave home. They said there was no treatment for CFS and no doctors could cure them.
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What they tried
Also tried
Their words about each treatment
- caffeine · Worse
I had to drink caffeine which I never touch caffeine with cfs and that didn't even work I just felt severe heart palpitations and I was blacking out a lot
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| over 10 years before May 2024 | onset of CFSHad it over 10 years saw many doctorsIn context ↗ | Not stated |
| about 6 years before May 2024 | jury selection day destroyed themhaving to go to jury selection day which destroyed me I had to sit up hours which was so bad I was cryingIn context ↗ | Moderate |
| 2024-05-06 | bedridden, unable to walk or leave homeI am no longer able to walk or leave my home.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
having to go to jury selection day which destroyed me I had to sit up hours which was so bad
In context ↗ - Brain fog
debilitating brain fog 24/7, unable to even concentrate
In context ↗ - Heart symptoms & palpitations
I just felt severe heart palpitations
In context ↗ - POTS & dysautonomia
I was blacking out a lot
In context ↗ - Muscle weakness
I can barely walk
In context ↗