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ME/CFS Somewhat betterIll 10 years before improving or writing

ME/CFS for a decade with a bad crash, some recovery from long COVID breathing issues

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
10 years
Last post
Sep 2024
In their words
  • Condition: ME/CFSI’ve had a CFS diagnosis since 2015 In context ↗
  • Now: Somewhat betterI’ve experienced some recovery in the past year with Long Covid breathing issues that I faced. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A UK man diagnosed with CFS in 2015 has lived with it for about a decade, with peaks and troughs, suicidal thoughts during a bad crash, and a further worsening after he caught Covid and developed long COVID complications. In the past year he has had some recovery from long COVID breathing issues. He has also developed new food intolerances to gluten and lactose and a bunch of skin allergies.

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Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
2015diagnosed with CFSI’ve had a CFS diagnosis since 2015 In context ↗
—bad crash with suicidal thoughtsI’ve though about ending it all several times since then once during a bad crash In context ↗
—caught Covid and developed Long Covid complications, everything much worseonce again after I caught Covid and developed Long Covid complications making everything so much worse In context ↗
2024-09-12some recovery from long COVID breathing issues; new food intolerances and skin allergiesI’ve experienced some recovery in the past year with Long Covid breathing issues that I faced In context ↗

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI’ve experienced some recovery in the past year with Long Covid breathing issues that I faced In context ↗
  • Mast cell (MCAS) & allergiesI’ve also developed a bunch of skin allergies too. In context ↗
  • Anxiety & low moodI’ve though about ending it all several times since then In context ↗

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