Long COVID
Mild → no benefitIll for 6 years
Long COVID with orthostatic intolerance, no better after gym or breathing training
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 6 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
Orthostatic Intolerance is a big issue for me a long hauler.
In context ↗ - At worst: Mild
I have since stopped working, and decided to focus full-time on trying to, not only stop exacerbating it, but also reversing it.
In context ↗ - Now: No benefit
My issue has been progressive ... I haven't had much success. My chest muscles seem permanently screwed up.
In context ↗ - Began after: COVID
Orthostatic Intolerance is a big issue for me a long hauler.
In context ↗
Summary
A long COVID patient ill since 2020, with orthostatic intolerance they said was worsened badly by dehydration and progressive chest and upper back tightness they blamed on poor pacing. They stopped working to focus full time on stopping and reversing the muscle wasting. Almost daily gym work and inspiratory muscle training had not helped, and they feared the damage was permanent.
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What they tried
Also tried
Their words about each treatment
- ORS formula · Helped
Before anyone says anything about glucose, I can tell you 100% it makes the total difference when it comes to hydration.
In context ↗ - keto diet · Worse
In the last I tried the keto diet with just using pure electrolytes and water, and it was really hard keeping up. I could feel the difference. It was awful.
In context ↗ - backpod · Not said
there's maybe 70% chance I tried (backpod, LDN, apheresis, massage, lacrosse ball, supplements, countless drugs, physiotherapy, etc. )
In context ↗ - going to the gym · No change
I go to the gym almost everyday, without making it worse, and try to work on these muscles.
In context ↗ - inspiratory muscle training · No change
I also do plenty of inspiratory muscle training, to try and expand the ribcage. It's really not moving the needle.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | long COVID began; upper back and chest tightness startedLong-term chest muscle damage (since 2020). Upper back super tight.In context ↗ | Mild |
| 2026-02-02 | chest/back tightness progressed; stopped working, muscles atrophiedI have since stopped working, and decided to focus full-time on trying to, not only stop exacerbating it, but also reversing it.In context ↗ | Mild |
Adverse events
- Keto and low-carb diets“In the last I tried the keto diet with just using pure electrolytes and water, and it was really hard keeping up. I could feel the difference. It was awful.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
even talking was a trigger, and I was not aware at first
In context ↗ - POTS & dysautonomia
Orthostatic Intolerance is a big issue for me a long hauler.
In context ↗ - Pain & fibromyalgia
Long-term chest muscle damage (since 2020). Upper back super tight.
In context ↗ - Muscle weakness
My muscles at my chest and back area seem atrophied and even scarred.
In context ↗