ME/CFS
Outcome unclearIll for 12 years
About 12 years ill with suspected PEM, now learning about ME/CFS and seeking diagnosis
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 12 years
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I definitely think I have it. I have had it for about 12 years.
In context ↗ - Began after: stress or burnout
I was once active, but also a spaz (trauma/adrenaline, poor life choices), burned up all my fuel, I think.
Summary
A person ill for about 12 years with suspected PEM. They linked onset to trauma/adrenaline and 'burned up all my fuel'. By October 2024 they were seeking a GP diagnosis and PEM acknowledgement; their GP wanted ADHD meds and/or Wellbutrin, which they said had made them worse. They were new to learning about CFS/PEM and thought they had it for sure.
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What they tried
Their words about each treatment
- Wellbutrin · Worse
I hate Wellbutrin, bad experience from being on it for a year, made me worse
In context ↗ - surgery for the fibroid inside of my uterus · Helped
that crazy flow and cramps went away after surgery, still had cramps but not as bad
In context ↗
Adverse events
- Bupropion (Wellbutrin)“I hate Wellbutrin, bad experience from being on it for a year, made me worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
What tips can I use to get my GP to dx PEM. I definitely think I have it.
In context ↗ - Brain fog
With the way my brain has been, I can’t remember new information.
In context ↗