Long COVID with breathlessness and multi-organ symptoms, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Sep 2021
In their words
- Condition: Long COVID
I am also a long hauler
In context ↗ - At worst: Mild
still 120 just when walking, still can't exercise, not sure when I'll be able again
In context ↗ - Now: Somewhat better
I still have some symptoms left, some SOB, tachycardia, abdominal pain, and a constant fever. But much better than in April-June
In context ↗ - Began after: COVID
I got infected in March
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
Puffin 21905, 28, developed long COVID after a March 2020 infection; early weeks were mild, then intense exercise preceded an April crash with breathlessness and multi-organ symptoms. By December 2020 she was much better but still had breathlessness, tachycardia, abdominal pain and fever. Heart rate improved by March 2021, though walking still raised it to 120 and exercise was impossible; by September 2021 fever was almost gone but reinfection suspected.
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What they tried
What they credit
Also tried
Their words about each treatment
- milk thistle (Legalon) · Not said
I am trialling milk thistle now
In context ↗ - ivermectin · No change
took a 5 day course of ivermectin and it did nothing for me
In context ↗ - Vitamin B complex · Helped
Vitamin B complex has helped me sleep even before covid, I used it in 2011 to manage my stress and insomnia.
In context ↗ - cetirizine · Helped
taking cetirizine and famotidine helps i think
In context ↗ - paracetamol · No change
Paracetaml and ibuprofen doesnt affect mine either
In context ↗
Approaches: H1 antihistamines · H2 blockers
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | COVID infection, initially mildI got infected in March and for the first 3-4 weeks it was very mildIn context ↗ | Near normal |
| April 2020 | crashed after working out intensively; all possible symptomsI had a crash in April with shortness of breath starting and the rest of the coronacoaster affecting every single organ in my body.In context ↗ | Not stated |
| December 2020 | much better than April-June but still symptomaticI still have some symptoms left, some SOB, tachycardia, abdominal pain, and a constant fever. But much better than in April-JuneIn context ↗ | Not stated |
| March 2021 | heart rate improved; still cannot exercisemy HR got better since last March ... but still 120 just when walking, still can't exerciseIn context ↗ | Mild |
| September 2021 | fever almost gone; suspected reinfectionI have it since March 2020, it was almost gone but I suspect I was reinfectedIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I was working out intensively during the first 4 weeks, then I had a crash in April
In context ↗ - Temperature regulation
it's a neurological fever, I have it since March 2020
In context ↗ - Sleep problems
I used it in 2011 to manage my stress and insomnia.
In context ↗
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