ME/CFS
Outcome unclear
ME/CFS with joint pain and cold intolerance; hot desert trips gave temporary relief
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
I know some people with cfs have comorbid conditions that might make it hard to lose, but for me it was enough to just eat less.
In context ↗ - At worst: Mild
I go for a hike once a week. It leaves me feeling like crap for several days after
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Hawk 54383 described ME/CFS with joint pain and cold intolerance, and said weekly hikes left them feeling terrible for several days. Hot, dry desert trips gave temporary relief, with better circulation, less joint pain and a little more energy. Over three years of calorie counting they lost almost 60 lbs, and a later high-fat diet reduced hunger and helped them reach a healthy weight.
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What they tried
Also tried
Their words about each treatment
- visiting the desert in hot, dry weather · Helped
every year I visit the desert when it's in the 90s or low 100s and it always makes me feel a bit better
In context ↗ - gentle exercise · Worse
I tried lots of different kinds of "gentle" exercise, but they all made my joint pain worse
In context ↗ - a hike once a week · Worse
I go for a hike once a week. It leaves me feeling like crap for several days after
In context ↗ - counting calories · Helped
started counting calories, and now 3 years and almost 60lbs later I'm just about at my weight goal
In context ↗ - high fat diet · Helped
switching to a high fat diet worked for me. It makes me less hungry, so I eat less overall
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2018-09-26 | hot, dry desert visit eased joint pain and fatigueevery year I visit the desert when it's in the 90s or low 100s and it always makes me feel a bit better.In context ↗ | Mild | Altitude and climate change of location |
| 2018-10-04 | weekly hike caused several days of feeling terribleIt leaves me feeling like crap for several days afterIn context ↗ | Mild | |
| 2023-08-04 | high-fat diet reduced hunger and helped reach a healthy weightswitching to a high fat diet worked for me. It makes me less hungry, so I eat less overall, and I was eventually able to get back down to a healthy weight.In context ↗ | Not stated |
Adverse events
- Everyday exercise and activity“I tried lots of different kinds of "gentle" exercise, but they all made my joint pain worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
my joint pain eases up a bit
In context ↗ - Temperature regulation
I can't stand the cold or humid weather
In context ↗ - Post-exertional malaise
It leaves me feeling like crap for several days after
In context ↗