ME/CFS
Outcome unclear
ME/CFS with PEM, pacing one task a day; tried lymphatic drainage and tracking arm band
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
It’s an arm band that tracks your symptoms & rly helps w pacing & alleviating the ick of pem (me/cfs)
In context ↗ - At worst: Mild
I have a cane that I rarely use but I love it bc it is there if I ever do need it ... After appendix surgery I absolutely needed it
In context ↗
Read from 9 of their posts and comments; links to the 8 this page draws on
Summary
They described post-exertional malaise, managed by pacing, low light, cool air and one task a day, and said low lighting, sitting or lying down, cool air and not talking eased symptoms. They said lymphatic drainage videos helped them, a symptom-tracking arm band helped them pace and eased PEM, and avoiding high-fiber, high-histamine foods helped a lot. They kept a cane they rarely needed, and needed it after appendix surgery.
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What they tried
Also tried
Their words about each treatment
- lymphatic drainage · Helped
do some lymphatic drainage stuff for long covid patients they have follow alongs on yt (specifically for the chest and neck area ). It rly helps me !!
In context ↗ - arm band that tracks your symptoms · Helped
It’s an arm band that tracks your symptoms & rly helps w pacing & alleviating the ick of pem (me/cfs)
In context ↗ - pacing · Helped
just remember to pace (instead of a whole room/whole entire project try breaking it up into steps) ... I feel alot better if I’m in a “cleaner” space but pacing is such key here
In context ↗ - avoiding high fiber / high histamine foods · Helped
I definitely try to avoid high fiber / high histamine foods for my own health personally which usually does help a crap ton .
In context ↗ - radical acceptance · Helped
Practicing radical acceptance is key, here :,)
In context ↗ - cane · Helped
I have a cane that I rarely use but I love it bc it is there if I ever do need it . After appendix surgery I absolutely needed it .
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS, onset not describedalleviating the ick of pem (me/cfs)In context ↗ | Not stated |
| 2026-10-05 | still pacing, keeps a cane they rarely needI have a cane that I rarely use but I love it bc it is there if I ever do need itIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
ALLL THE TIMEEE
In context ↗ - Post-exertional malaise
rly helps w pacing & alleviating the ick of pem (me/cfs)
In context ↗ - Light & noise sensitivity
low lighting, sitting / even better laying down, cool air / temps, no talking etc
In context ↗ - Mast cell (MCAS) & allergies
I definitely try to avoid high fiber / high histamine foods for my own health personally
In context ↗