Long COVID
Severe → no benefitIll for 4 years
Long COVID with severe fatigue and breathlessness, no improvement, too winded to walk
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 4 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I was diagnosed with long haul Covid in 2023.
In context ↗ - At worst: Severe
I couldn’t talk or walk without being severely winded.
In context ↗ - Now: No benefit
my health has been deteriorating since I got Covid a 5th or 6th time at the beginning of this year
In context ↗ - Began after: COVID
I got Covid in 2022. I was diagnosed with long haul Covid in 2023.
In context ↗
Summary
Zephyr 27018 got Covid in 2022 and was diagnosed with long haul Covid in 2023; they visited a Mayo Clinic long-haul clinic. They report severe fatigue, POTS with heart rate spikes to 134, breathlessness needing up to 5 litres of oxygen at home, and depression. A fifth or sixth Covid infection at the start of 2026 left their health deteriorating; by mid-2026 they could not talk or walk without being severely winded.
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What they tried
Also tried
castor oil pack· Helpedbeet juice· Helpedbeta kicker· No changeneuro rehab therapy· Worseoxygen at home· Not saidbreathing treatment and steroid· Not said
Their words about each treatment
- neuro rehab therapy · Worse
Yesterday I did a lot of therapy and today I can barely move, and I’m severely fatigued.
In context ↗ - beta kicker · No change
Just took 1/2 of 10 mg of my beta kicker but heart is still galloping
In context ↗ - oxygen at home · Not said
Prior to coming to the er I had to use up to 5 liters of oxygen at home
In context ↗ - breathing treatment and steroid · Not said
First er I went too was kind and gave me breathing treatment and steroid.
In context ↗ - castor oil pack · Helped
try castor oil packs, put heating pad on top, it clears out the lungs ... it helped me last time I was having severe shortness of breath
In context ↗ - beet juice · Helped
Beet juice also helps with brain fog.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | got Covid, later diagnosed with long haul CovidI got Covid in 2022. I was diagnosed with long haul Covid in 2023.In context ↗ | Not stated |
| 2025-09-02 | crashed after a lot of neuro rehab therapyYesterday I did a lot of therapy and today I can barely move, and I’m severely fatigued.In context ↗ | Severe |
| 2025-10-10 | POTS flare with heart rate 134 walking to the kitchenSo heart rate just spiked to 134 after walking from den to kitchen!In context ↗ | Moderate |
| beginning of 2026 | fifth or sixth Covid infection, health deteriorating sincemy health has been deteriorating since I got Covid a 5th or 6th time at the beginning of this yearIn context ↗ | Severe |
| 2026-06-18 | deteriorating, two ER visits for severe breathlessness, up to 5 litres of oxygen at homePrior to coming to the er I had to use up to 5 liters of oxygen at home, that’s the most I have ever had to use.In context ↗ | Severe |
Adverse events
- “Yesterday I did a lot of therapy and today I can barely move, and I’m severely fatigued.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBreathlessnessHeart symptoms & palpitationsPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
Yesterday I did a lot of therapy and today I can barely move
In context ↗ - POTS & dysautonomia
it feels like long haul Covid and pots is flaring up at the same time
In context ↗ - Heart symptoms & palpitations
heart rate just spiked to 134 after walking from den to kitchen
In context ↗ - Breathlessness
I also went to er twice today for severe dyspnea(shortness of breath.)
In context ↗ - Anxiety & low mood
I have struggled w depression and thoughts of not wanting to be here
In context ↗