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ME/CFS No benefit

ME/CFS symptoms remained after POTS control; sore throat, aches, no energy

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Mar 2023
In their words
  • Now: No benefityet all of those other symptoms are still there, some worse than before In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user wrote in r/cfs in early 2023 that early warning signs were very similar to their symptoms; they used to attribute these to POTS, but after their doctor and they got POTS fairly well controlled, other symptoms remained and some worsened. They had not considered checking heart-rate variability and planned to watch it, noting they woke with a sore throat, muscle weakness/aches, no energy or desire to move, and an HRV of 17 against a usual average of 45. They thanked the commenter for helpful input.

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