ME/CFS at 17, napping through school and work, now about 95% better, crediting naps and sleep
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2019
In their words
- Condition: ME/CFS
My experience with Chronic Fatigue (mild CFS)
In context ↗ - At worst: Mild
Thankfully for me, my CFS was not the strongest, and I did manage to get on with my daily routine, but it was definitely a challenge most days.
In context ↗ - Now: Near normal
my CFS completely (I say completely I mean like 95%) disappeared over-night
In context ↗
Summary
A UK man fell ill with mild CFS at 17, getting through school by napping in lessons and sleeping for hours after school, and through work by sneaking in naps; he also had extreme sweating, headaches, poor concentration and a swollen lymph node. He credited 10-minute naps, ten hours of sleep a night, breakfast and water; caffeine did not help. In 2019, at 19, the illness disappeared overnight, leaving him about 95% better and able to work without needing a nap in the first two hours.
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What they tried
What they credit
Also tried
Their words about each treatment
- 10 minute naps · Helped
10 minute naps can play a huge mind game on your brain into thinking you have slept well. It sometimes gets rid of my CFS for a decent duration of time.
In context ↗ - Sleeping 10 hours or more at night · Helped
Make sure you sleep 10 hours of even more at night!!! I definitely felt a lot better in the morning, but it was still challenging.
In context ↗ - Eating breakfast and drinking plenty of water · Helped
Eat breakfast and drink plenty of water, makes you feel more awake
In context ↗ - Caffeine · No change
(Caffeine did not help me at all)
In context ↗ - Sport · Helped
They never advised me to do sport but I felt it was something that would benefit me, and it did.
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. The dashed part: the story doesn’t say when. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 17 | CFS began at 17It happened to me when I was 17 year old male (now 19)In context ↗ | Mild |
| peak of CFS, still at school | napping through school days, sleeping after schoolDuring the peak of my CFS I was still at school and I always ended up napping in lessons.In context ↗ | Mild |
| 2019 | CFS disappeared overnightforwarding to 2019 my CFS completely (I say completely I mean like 95%) disappeared over-nightIn context ↗ | Near normal |
| 2019-06-24 | still about 95% recoveredMine luckily went overnight which I am thankful forIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I used to go to sleep immediately and wake up at around 5 to 8pm depending on how bad it was on the day.
In context ↗ - Temperature regulation
I used to sweat extremely bad and it was embarassing
In context ↗ - Brain fog
fatigue, difficulties concentrating
In context ↗ - Flu-like symptoms
I have a swollen lymph node in my throat on the left side (and still do)
In context ↗ - Headaches & migraine
headaches and more
In context ↗ - Muscle weakness
I felt very weak during the mornings and I would not be able to carry out sport
In context ↗
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