ME/CFS
Severe → no benefit
Severe ME/CFS, unable to work, no improvement; exertion and advice worsened quality of life
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
my symptoms became so hard to manage while being severe so I couldn't work
In context ↗ - At worst: Severe
my symptoms became so hard to manage while being severe so I couldn't work
In context ↗ - Now: No benefit
the symptoms I'm getting from all this is making my quality of life worse
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 21-year-old with severe ME/CFS who could not work described living with an older brother who did not understand that exertion made their body hurt. They were managing with pacing and pain medication but said being recommended power yoga, going to the gym, babysitting and being tasked with scraping up carpet glue made their quality of life worse.
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What they tried
Also tried
Their words about each treatment
- pacing · Not said
I've been managing with pacing and pain meds but my body hurts so bad.
In context ↗ - power yoga · Worse
the back row was so hot I felt like I was dying and had to step out
In context ↗ - the gym · Worse
to going to the gym, my body hurts
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | symptoms became severe and they could not workmy symptoms became so hard to manage while being severe so I couldn't workIn context ↗ | Severe |
| 2025-04-23 | managing with pacing and pain meds while family push exertionI've been managing with pacing and pain meds but my body hurts so badIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my body can't tolerate exertion
In context ↗ - Pain & fibromyalgia
my body hurts so bad
In context ↗