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Long COVID Severe → much betterNeeds ongoing treatment

A Simple Method to Never Crash Again - David’s Long Covid Recovery

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving
Not stated
Published
No date given
Read the original ↗
In their words
  • Condition: Long COVIDthat's really when my real long covid journey began Watch the video ↗From the video’s captions
  • At worst: SevereI got operate function for about an hour a day four or five days a week so most of the timeline down Watch the video ↗From the video’s captions
  • Now: Much betternow I'm not I'm a lot better but I'm not fully recovered Watch the video ↗From the video’s captions
  • Began after: COVIDI got Co two year two years ago
  • Says they never had: BreathlessnessI kept hearing the people being breathless and I wasn't breathless Watch the video ↗From the video’s captions
  • Says they never had: Gut problemsI did not have things like heart heart issues or breathlessness or pain or gut issues Watch the video ↗From the video’s captions
  • Says they never had: Heart symptoms & palpitationsI did not have things like heart heart issues or breathlessness or pain or gut issues Watch the video ↗From the video’s captions
  • Says they never had: Pain & fibromyalgiaI did not have things like heart heart issues or breathlessness or pain or gut issues Watch the video ↗From the video’s captions

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Summary

David got COVID about two years before the interview and was mostly lying down, managing about an hour of activity a day on four or five days a week. He felt fully recovered at three to four months, but overdoing it on holiday at six months caused a complete relapse. He credits heart-rate wearables for pacing, a low-histamine diet and compression garments. He is now a lot better but not fully recovered.

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What they tried

Their words about each treatment
  • wearables such as heart rate monitors, Garmin watch and Aura ring · HelpedI'm using information from wearables like heart rate monitors that that tell me how I am Watch the video ↗From the video’s captions
  • low histamine diet · Helped a lotso I discussed with them going on a low histamine diet so I tried that for a week Watch the video ↗From the video’s captions
  • compression leggings and arm compression · Helped a lotI then I bought some arm compression and they reduced it by a further 5 to 10 beats per minute Watch the video ↗From the video’s captions
  • Yoga Nidra, app breathing exercises and deep belly breathing · Helpedbreathing exercises yoga NRA is good Watch the video ↗From the video’s captions

Approaches: POTS medication · Diet · Mind-body practices · Pacing

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 2 steps have no time and sit in story order between the steps around them. 1 step says too little to place on the scale and is only in the table. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
two years agoCOVID: very ill for a day, positive for two weeksI got Co two year two years ago and I had it really M very ill for a day but I was positive two weeks Watch the video ↗From the video’s captionsNot stated
after 3 or 4 monthsFelt fully recoveredafter about 3 or 4 months I felt fully recovered Watch the video ↗From the video’s captionsRecovered
after 6 monthsComplete relapse after doing too much on holiday; able to function about an hour a dayafter 6 months I went on holiday did too much had a complete relapse Watch the video ↗From the video’s captionsSevere
a year agoCrashed for a week after a second bike ridewhen I got back I crashed for a week Watch the video ↗From the video’s captionsModerate
on joining the long COVID clinicFelt much better within weeks of a low-histamine dietthat's like a cloud had lifted it was amazing I felt so good Watch the video ↗From the video’s captionsModerateLow-histamine diet
—With compression, mowed the whole lawn and jogged without stopping for the first time in a yearso the first time in a year I moved the lawn all in one game Watch the video ↗From the video’s captionsMildCompression garments
four months agoHeart rate stayed high for two weeks after an easy bike rideit actually took two weeks before all my numbers were back to normal Watch the video ↗From the video’s captionsMild
nowA lot better but not fully recovered; uses wearables to avoid crashesnow I'm not I'm a lot better but I'm not fully recovered Watch the video ↗From the video’s captionsMild

Adverse events

  • “I crashed for a week” Watch the video ↗From the video’s captions Made symptoms worse
  • “had a complete relapse new symptoms worse symptoms not recovering” Watch the video ↗From the video’s captions Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseonce I feel it's too late I'm crashing Watch the video ↗From the video’s captions
  • Brain fogmy symptoms were mostly fatigue brain fog and skin issues Watch the video ↗From the video’s captions
  • POTS & dysautonomiathey diagnosed me with pop mcast Watch the video ↗From the video’s captions
  • Sleep problemsI didn't have good sleep but Friday nights were particularly bad Watch the video ↗From the video’s captions

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