Long COVID
Moderate → somewhat betterIll 3 years before improving or writingNeeds ongoing treatment
Housebound with long COVID, now somewhat better after supplements and chiropractic
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
It first started out in October of 2021, when i think i got covid?
In context ↗ - At worst: Moderate
i haven't left my house more then 2x in the past almost 4 months
In context ↗ - Now: Somewhat better
I'm doing actually pretty good! ... i'm getting closer to my old life finally. I'm able to go out and about a tad
In context ↗ - Began after: COVID
It first started out in October of 2021, when i think i got covid?
In context ↗
Read from 18 of their posts and comments; links to the 10 this page draws on
Summary
After a suspected COVID infection in October 2021, they developed loss of taste and smell; a hospitalised bowel infection in August 2023 preceded severe anxiety and sympathetic nervous system dysfunction that left them housebound by early 2024. Magnesium, potassium and iron supplements, cranial sacral therapy, lymph drainage and chiropractic adjustments they credit brought gradual gains; by August 2024 they could shop and walk the mall on good days, with bad days still at home.
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What they tried
What they credit
Also tried
hydroxyzine· Helped a lot · wore offchiropractic adjustments (occipital / atlas, vagus nerve)· Helped a lotdiet and gut healing· Helpedice packs· Helpedrest· Helpedmeditation and healing tones 432 Hz· Helpedclaritin· WorseD3 liquid· Worsevitamin C· Not saidvitamin A· Not saidvitamin E· Not saidzinc· Not saidB1· Not saidultra Omega 3 (500EPA/250DHA)· Not said
Their words about each treatment
- diet and gut healing · Helped
Yes diet was a huge help for me! ... I also have been eating oranges after my meals to improve stomach acid and that's helped immensely.
- magnesium glycinate · Helped
That and a magnesium & potassium deficiency. Taking both of those supplements helped me greatly!
In context ↗ - iron · Helped
Iron played a huge part with the almost fainting triggerless panic attacks for me, nearly got rid of them fully in a couple weeks
In context ↗ - claritin · Worse
I took 1/3 of a tablet, and felt like crap for about an hour after taking it ... the next day i took the other 2/3 and that was a mistake. About 20 minutes after taking it i was laying down resting and i felt like my heart was stopping
In context ↗ - hydroxyzine · Helped a lot
i got prescribed hydroxyzine 10mg as needed by my therapist and that was a miracle. It fixed the what i later found out to be histamine flare ups, instantly. That worked for about a month, then it started making me feel like my body was relaxing too much, and the next day after that it stopped working.
In context ↗ - D3 liquid · Worse
I tried taking a D3 liquid form mixed with water (so very diluted) and it sent me into a huge near fainting episode within minutes of trying the smallest sip ever.
In context ↗ - ice packs · Helped
The only thing helped those episodes was ice packs everywhere, and laying on the floor while elevating my feet.
In context ↗ - rest · Helped
What helped me was allowing my body to rest and recoup
In context ↗ - meditation and healing tones 432 Hz · Helped
meditation or at least meditating tones have been very helpful too ... listening to a video on healing tones (432hz) for deep relaxation and that's helped a lot
- walking through the house and hand sewing · Helped
I try to walk thought my house daily, and i do a lot of hand sewing (i make custom service dog gear), and that's helped immensely.
In context ↗ - vitamin C · Not said
2,250mg of vitamin C
In context ↗ - vitamin A · Not said
30,000IU of vitamin A
In context ↗ - vitamin E · Not said
1,200IU of vitamin E
In context ↗ - ultra Omega 3 (500EPA/250DHA) · Not said
2 pills of ultra Omega 3 (500EPA/250DHA)
In context ↗ - cranial sacral therapy · Helped a lot
yesterday after getting my first cranial sacral therapy session, they were GONE!!!!
In context ↗ - lymph drainage therapy · Helped a lot
cranial sacral therapy, and lympth drainage therapy were both game changers so far. I'm only on day 2 after the lympth drainage, and i feel like i swapped bodies with someone super healthy
In context ↗ - chiropractic adjustments (occipital / atlas, vagus nerve) · Helped a lot
My occipital was so far out of alignment that it was pushing against my atlas, and causing my sympathetic to go into hyper drive. I've been getting adjusted for over a month and a half now, and i'm getting closer to my old life finally.
In context ↗
Approaches: Alternative therapies · Exercise and activity · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| October 2021 | suspected COVID with vomiting and lost tasteIt first started out in October of 2021, when i think i got covid? I was down for a dayIn context ↗ |
| August 2023 | small bowel infection, hospital 3 daysi got a small bowel infection (no idea what caused it) that landed me in the hospital for 3 daysIn context ↗ |
| end of September 2023 | triggerless panic attack at work, ER, deficienciesi had to be picked up from work due to a triggerless panic attack that almost made me pass outIn context ↗ |
| February 2024 | nervous system overdrive, houseboundIt got so bad that i wasn't able to even leave the house to sit out on my porchIn context ↗ |
| May 2024 | nervous system starting to regulate; can watch TV, sewAs of today, i can watch a bit of TV, sew, be on my phone a bit, and listen to my old music again. But i still can't leave my home.In context ↗ |
| 2024-06-09 | cranial sacral therapy and lymph drainageI found out that cranial sacral therapy, and lympth drainage therapy were both game changers so farIn context ↗ |
| 2024-08-22 | chiropractic adjustments; can shop and walk the mall on good daysi'm getting closer to my old life finally. I'm able to go out and about a tad, i can sometimes go to the store, and walked around the mall for the 2nd time this month today!In context ↗ |
Adverse events
- Loratadine (Claritin)“I took 1/3 of a tablet, and felt like crap for about an hour after taking it ... i felt like my heart was stopping and that i was being pulled from my body.” In context ↗ Side effects
- Hydroxyzine (Atarax, Vistaril)“it started making me feel like my body was relaxing too much, and the next day after that it stopped working.” In context ↗ Side effects
- Vitamin D and sun exposure“I tried taking a D3 liquid form mixed with water (so very diluted) and it sent me into a huge near fainting episode within minutes of trying the smallest sip ever.” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Gut problemsHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteNeuropathy & tinglingPOTS & dysautonomiaSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Loss of smell or taste
i fully lost my taste & smell for damn near 6 months
In context ↗ - Gut problems
had a severe potassium & magnesium deficiency, and had extreme gut issues
In context ↗ - POTS & dysautonomia
nearly got rid of my POTS symptoms as well
In context ↗ - Heart symptoms & palpitations
it helped with my pcv (premature heartbeat) and blood pressure immensely
In context ↗ - Neuropathy & tingling
i did have pretty bad tingling in my hands and feet
In context ↗ - Temperature regulation
extreme heat flashes, tunnel or spinning vision
In context ↗ - Vision problems
tunnel or spinning vision
In context ↗ - Light & noise sensitivity
i have days like yesterday where i can't even sit out on thw porch due to over stimulation
In context ↗ - Sleep problems
And loosing sleep, Really drained me
In context ↗
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