Long COVID with PEM and digestive issues, now nearly back to normal after B12 and B1
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
long Covid hit a few weeks later when I started trying to exercise again
In context ↗ - At worst: Mild
I've somehow kept my job, family and overall sh1t together, just about, over the last few years
In context ↗ - Now: Near normal
still got all of the above but much less; I have control of my life rather than it controlling me
In context ↗ - Began after: COVID
Caught Covid very early on, long Covid hit a few weeks later when I started trying to exercise again
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
They caught COVID very early in the pandemic and developed long COVID weeks later, with PEM, adrenaline dumps and digestive issues, feeling fully healed after about 18 months. A second COVID infection was followed months later by muscle weakness, breathlessness, social anxiety and insomnia. They said large doses of B12, B1 and electrolytes allowed them to function, and by their latest posts were mostly recovered and in control of their life.
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What they tried
What they credit
Also tried
Their words about each treatment
- trying to exercise again · Worse
long Covid hit a few weeks later when I started trying to exercise again ( pem, adrenaline dumps and digestion issues etc )
In context ↗ - B12 · Helped
round two seems to be B12, B1, electrolyte deficiency in some combination. (Taking large doses of these allows me to function)
In context ↗ - small meals and minimise sugar / high GI carbs · Not said
Long term my overall gut health is slowly improving, but yes, small meals and minimise sugar / high GI carbs in the meantime.
In context ↗
Approaches: POTS medication · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | caught COVID; long COVID weeks later after trying to exercise againCaught Covid very early on, long Covid hit a few weeks later when I started trying to exercise againIn context ↗ | Not stated | |
| about 18 months after onset | felt fully healedTook about 18 months but felt fully healed.In context ↗ | Recovered | |
| — | after a second bout of Covid, muscle weakness, breathlessness, social anxiety and insomniaThen another bout of Covid, felt Ok for a few months then started getting weird bouts of muscle weakness, breathlessness, social anxiety, insomniaIn context ↗ | Mild | |
| 2024-07-08 | nervous system coping better; could enjoy coffee again in moderationI’ve gone past toleration and just beginning to actively enjoy the experience of a good coffee again in moderation of course!In context ↗ | Not stated | |
| 2026-09-12 | mostly recovered; symptoms much less, in control of lifestill got all of the above but much less; I have control of my life rather than it controlling me.In context ↗ | Near normal | Vitamin B12 |
Adverse events
- Vitamin B12“one side effect of B12 supplementation is low potassium / electrolyte imbalance” In context ↗ Refeeding or deficiency problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
( pem, adrenaline dumps and digestion issues etc )
In context ↗ - Anxiety & low mood
weird bouts of muscle weakness, breathlessness, social anxiety, insomnia
In context ↗
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