ME/CFS
Somewhat better
Moderate to severe migraines with ME/CFS, somewhat better after specialist and treatment
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
I also had terrible, terrible migraines with my CFS.
In context ↗ - Now: Somewhat better
I’m glad I decided to live because things have improved and I’m truly enjoying life.
In context ↗
Summary
A person with CFS who had moderate to severe migraines continually for many years, with daily numbness, tingling, vertigo, nausea and hearing and vision loss. After about three years with a headache specialist and roughly 1.5 years of trying different migraine treatments, the migraines fell to a few a month. They said things had improved, they had gained peace, and they were truly enjoying life.
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What they tried
Also tried
migraine treatments from a headache specialist· Helped a lot
Their words about each treatment
- migraine treatments from a headache specialist · Helped a lot
A headache specialist finally started a practice in my area and I’ve been working with him for about 3 years. Now, I only have a few migraines a month.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | CFS with continual moderate to severe migrainesI also had terrible, terrible migraines with my CFSIn context ↗ |
| 2017 ("Two years ago", Sept 2019) | at its worst, still searching for answersTwo years ago, I couldn’t have stopped looking for answers because it was too bad.In context ↗ |
| 2019 | after years with a headache specialist, migraines down to a few a month; enjoying lifeNow, I only have a few migraines a month. ... things have improved and I’m truly enjoying life. |
Symptoms mentioned
Anxiety & low moodGut problemsHeadaches & migraineNeuropathy & tinglingPOTS & dysautonomiaVision problems
Their words about their symptoms
- Headaches & migraine
Now, I only have a few migraines a month.
In context ↗ - Neuropathy & tingling
numbness/tingling
In context ↗ - Vision problems
hearing/vision loss
In context ↗ - Anxiety & low mood
I completely understand the feeling of considering suicide because the pain is just too bad.
In context ↗