17 years of ME/CFS with pain and severe days, somewhat better through rest
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 17 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I have lived with this condition for 17 years.
In context ↗ - At worst: Moderate
I recently started getting better through rest and was being signed off work by the doctor.
In context ↗ - Now: Somewhat better
I recently started getting better through rest ... sometimes I’m too severe to even daydream
Summary
They had lived with ME/CFS for 17 years when, in November 2025, they reported starting to get better through rest while signed off work. A GP appointment prompted by their mother cut the sick note to four weeks and brought a referral to a CFS clinic, leaving them stressed about losing their job and determined to refuse exercise. By June 2026 they still described pain and days too severe to daydream.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- rest · Helped
I recently started getting better through rest
In context ↗ - looking inwards · Helped
The only thing that ever helped me was looking inwards
In context ↗ - The Way of Rest by Jeff Foster · Helped
The Way of Rest by Jeff Foster ... really helped calm my nervous system
In context ↗
Approaches: Radical rest
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | ME/CFS onset, 17 years before November 2025I have lived with this condition for 17 years.In context ↗ | |
| November 2025 | started getting better through rest while signed off workI recently started getting better through rest and was being signed off work by the doctor.In context ↗ | Radical rest |
| June 2026 | still in pain, with days too severe to even daydreamsometimes I’m too severe to even daydreamIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
When the pain gets too much
In context ↗ - Anxiety & low mood
Super stressed…
In context ↗
Ask Miruvor AI
Similar stories
-
Almost bedridden with ME/CFS, now much better after a specialist regimen and pacing
A California woman infected with COVID in March 2020 was sick six months, partly recovered, then relapsed and was almost bedridden by early 2023, unable to drive and sensitive to light and noise. An out-of-pocket ME/CFS specialist regimen of LDN, Abilify,…
-
Unable to walk with long COVID, much better on immunosuppressants and anti-inflammatories
After a third COVID infection they had significant shortness of breath, dizziness, exercise intolerance, tachycardia and hypertension, then became unable to walk and extremely sick for months after hiking and a COVID/flu vaccine. Six months of searching…
-
Bedbound with ME/CFS, now housebound and somewhat better with rest and low-dose naltrexone
After about 1.5 years of ME/CFS with push–crash cycles, they became bedbound for two months in mid-2026, getting up only for the bathroom. They improved slowly with four months of rest, low-dose naltrexone, a beta-blocker, compression and salt/fluids. By…
-
Bedbound with ME/CFS for over a year, now partly better with pacing and LDN
A Dutch long-hauler became ill with COVID in mid-2022 and was bedbound, in bed around the clock, for over a year. Rest and pacing, a 75% vegetable diet that fixed their gut, NAC for brain fog, LDN for PEM and ivabradine for POTS brought slow, partial gains.…