ME/CFS
Mild → no benefitIll for 5 years
Missing days of work with ME/CFS, no improvement after therapy and immunotherapy
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 years
- Last post
- Feb 2021
In their words
- Condition: ME/CFS
I have spent years since battling chronic fatigue
In context ↗ - At worst: Mild
Once a month or so I have several days where I will collapse and sleep nonstop- 3 days at a time or so.
In context ↗ - Now: No benefit
I have spent years since battling chronic fatigue
In context ↗ - Began after: glandular fever or EBV
they found some remnants of mononucleosis, and believed that I had been experiencing mono for several months leading up to the testing
- Says they never had: Pain & fibromyalgia
I myself don’t find pain being a main factor in my specific issues.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They became ill in autumn 2015, their first semester of college, when blood tests showed remnants of mononucleosis, followed by five years of chronic fatigue. By February 2021, aged 23, they were teaching music with excellent job performance, but about once a month missed several days of work, sleeping nonstop for days at a time. They had tried extensive testing, therapy, psychiatric medication and a year of allergy immunotherapy.
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What they tried
Also tried
immunotherapy· Not saidseptoplasty· Not saidtherapy· Not saidpsychiatric medications· Not saidlosing weight· Not saidregular exercise· Not said
Their words about each treatment
- immunotherapy · Not said
allergy testing (immunotherapy for almost a year now)
In context ↗ - septoplasty · Not said
a septoplasty to help my breathing/sleep
In context ↗ - therapy · Not said
therapy, psychiatric help (on several medications and regular appointments)
In context ↗ - losing weight · Not said
I’ve lost weight, I regularly exercise- EVERYTHING
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Fall 2015 | became ill in first semester of college; mono detectedThis all started in the Fall of 2015 when I entered my freshman year of college.In context ↗ | Mild |
| 2019-2021 | about once a month collapsing and sleeping nonstop for days, missing workOnce a month or so I have several days where I will collapse and sleep nonstop- 3 days at a time or so.In context ↗ | Mild |
| 2021-02-06 | still teaching full time with excellent performance but missing school daysmy job performance is excellent despite my physical problemsIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Once a month or so I have several days where I will collapse and sleep nonstop- 3 days at a time or so.
In context ↗