Eight years with ME/CFS, a booster brought a months-long flare, still struggling
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 8 years
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
I've had CFS for 8 years since getting mono
In context ↗ - Now: No benefit
Still struggling though!
In context ↗ - Began after: glandular fever or EBV
I've had CFS for 8 years since getting mono
In context ↗
Summary
Shore 49555 had CFS for eight years after mono, mostly somewhat manageable with ups and downs. A booster in January 2022 triggered a flare lasting over three months, with poor sleep, anxiety, a loopy head and fatigue worsened by mental or physical effort. She was trying sunshine, magnesium, chamomile tea, acupressure, meditation and stretching, and was still struggling in April 2022.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- sunshine · Not said
I've been trying to get sunshine ... Still struggling though!
In context ↗ - a new magnesium supplement · Not said
trying a new magnesium supplement
In context ↗ - chamomile tea · Not said
drinking chamomile tea
In context ↗ - water · Not said
drinking lots of water
In context ↗ - acupressure · Not said
some acupressure
In context ↗ - meditation · Not said
a little bit of meditation and stretching
In context ↗ - COVID vaccination as treatment · Worse
I've been going through a 3+ month flare up since I got my booster in January.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 7.8 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 8 years before April 2022 | CFS began after monoI've had CFS for 8 years since getting monoIn context ↗ | Not stated |
| between 2014 and January 2022 | CFS mostly manageable with ups and downsmostly somewhat manageable with ups and downsIn context ↗ | Mild |
| January 2022 | flare after COVID boosterI've been going through a 3+ month flare up since I got my booster in JanuaryIn context ↗ | Mild |
| 2022-04-03 | still in the 3+ month flare, trying self-careStill struggling though!In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I've been going through a 3+ month flare up since I got my booster in January.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“the booster shot made my cycle go crazy two months ago” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
which pops up even more if I push myself mentally/physically
In context ↗ - Brain fog
A fatigued and kind of loopy feeling in the brain
In context ↗ - Anxiety & low mood
heightened stress/anxiety contributing to lesser quality sleep
In context ↗ - Sleep problems
lesser quality sleep
In context ↗