ME/CFS
Relapsed
ME/CFS improved on leflunomide, then relapsed with a major flare
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- May 2018
In their words
- Now: Relapsed
I was doing GREAT on the 10mg dose in the first month. Then even better on the 20mg dose in the second month. Until last week when I started having a MAJOR flare.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Pond 20039 took leflunomide (Arava) for about 2.5 months. They felt great on 10 mg in the first month and even better on 20 mg in the second, but then began a major flare. Blood tests showed the liver was not tolerating the drug, so it was stopped. They were crushed and faced a week off before seeing the rheumatologist.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- Arava / Leflunomide · Helped
I was doing GREAT on the 10mg dose in the first month ... Until last week when I started having a MAJOR flare.
In context ↗
Approaches: Immunomodulators
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| first month | doing GREAT on the 10mg doseI was doing GREAT on the 10mg dose in the first month.In context ↗ |
| second month | even better on the 20mg doseThen even better on the 20mg dose in the second month.In context ↗ |
| last week | major flare; liver not tolerating AravaUntil last week when I started having a MAJOR flare. ... my liver isn’t tolerating the Arava.In context ↗ |
| 2018-05-09 | pulled off AravaJust got pulled off Arava today.In context ↗ |
Adverse events
- Leflunomide (Arava)“Until last week when I started having a MAJOR flare.” In context ↗ Autoimmune or inflammatory flare
- Leflunomide (Arava)“I had labs done at the same time and got a call today that my liver isn’t tolerating the Arava.” In context ↗ Liver or kidney problems