Long COVID
Moderate → no benefitIll for 1 month
Long COVID with insomnia, night sweats and daily malaise, no relief from sleep medicines
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 month
- Last post
- Jun 2021
In their words
- Condition: Long COVID
In terms of long hauling I'm still an infant so I cant tell you what's in store
In context ↗ - At worst: Moderate
May 17th through May 24th was a real struggle in trying to isolate and even sleep.
In context ↗ - Now: No benefit
ever day feels like a persistent slow decline into mild fever/general malaise
In context ↗ - Began after: COVID
I know my early symptoms suggest moderate/severe covid
Summary
A UK-variant COVID infection in May 2021 began with sore throat, cough and gut symptoms; around day six or seven a minor pneumonia showed on x-ray and they took dexamethasone and clarithromycin. Insomnia and night sweats dominated the second week, and melatonin, zopiclone and lorazepam gave almost no relief. By early June they had persistent throat inflammation, muscle twitching and daily malaise, and called themselves still an infant at long hauling.
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What they tried
Also tried
Their words about each treatment
- Dexemethasone · Worse
aggravated three fold by the dexemethasone course I was prescribed
In context ↗ - clarithromycin · Not said
The attending doctor prescribed me Dexemethasone at the time as well as clarithromycin for a course of 6 days.
In context ↗ - melatonin · No change
I tried various treatments including melatonin, zopiclone and lorazepam to virtually no success.
In context ↗ - tylenol · Not said
Not super hot but uncomfortable enough to treat with tylenol.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021-05-09 | COVID symptoms began with sore throat and coughMy symptoms started back on mothers day May 9th beginning with sore throatIn context ↗ | Mild |
| 2021-05-17 | pneumonia, night sweats and insomnia; struggling to isolate and sleepMay 17th through May 24th was a real struggle in trying to isolate and even sleep.In context ↗ | Moderate |
| 2021-05-25 | lungs and stools improved and cough stopped, but throat irritation and nightly low-grade fevers beganMy lungs seemed to be improving or had stopped declining.In context ↗ | Moderate |
| 2021-06-07 | one month in with persistent throat inflammation, muscle twitching and daily malaiseI'm just hitting the 1 month mark after first symptom presentation.In context ↗ | Mild |
Adverse events
- Corticosteroid pulses“I had major sweating problems early on closer to when I developed my pneumonia which was then aggravated three fold by the dexemethasone course I was prescribed.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodFlu-like symptomsGut problemsNeuropathy & tinglingSleep problemsTemperature regulation
Their words about their symptoms
- Flu-like symptoms
beginning with sore throat
In context ↗ - Temperature regulation
persistent nightly low grade fevers in the range of 99.0 - 100.0
In context ↗ - Sleep problems
nights of uncontrollable sweating and insomnia
In context ↗ - Gut problems
previous to that it was virtually all diarrhea
In context ↗ - Anxiety & low mood
had my anxiety in control
In context ↗ - Neuropathy & tingling
Muscle twitching has been a persistent problem for me since the beginning and has worsened over the last week. ... testicle pain (which was more numbness for me)
In context ↗