ME/CFS
Outcome unclear
ME and MCAS with anaphylaxis, too weak to steer a scooter, training an assistance dog
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
He does deep pressure therapy which I use for ME tremors and pain
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
This person had ME and MCAS with anaphylaxis. They lacked the strength to steer a mobility scooter, found buses too overstimulating and were asking for money for a wheelchair; the NHS had told them they were too young for a chair. They were also training an assistance dog that did deep pressure for ME tremors and pain and was learning scent detection for MCAS.
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What they tried
Also tried
occupational therapist (mobility aid acceptance)· Helpeddeep pressure therapy (assistance dog)· Not said
Their words about each treatment
- deep pressure therapy (assistance dog) · Not said
He does deep pressure therapy which I use for ME tremors and pain
In context ↗ - occupational therapist (mobility aid acceptance) · Helped
There's an OT I'm seeing who is helping me with coming to terms with mobility aids.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
the environment is too overstimulating
In context ↗ - Muscle weakness
I tried a mobility scooter though and didn't have the strength to steer it
In context ↗ - Pain & fibromyalgia
deep pressure therapy which I use for ME tremors and pain
In context ↗