Long COVID with very low blood pressure and heart rate, now able to leave house, far to go
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Jul 2022
In their words
- Condition: Long COVID
I had been battling Covid and Long Covid for 2 years and 4 months
In context ↗ - At worst: Severe
until I was finally strong enough to be able to leave the house 2 months later
In context ↗ - Now: Somewhat better
I still have a long way to go, but at least now, there are doctors and functional medicine specialist out there that have some idea of what is going on
In context ↗ - Began after: COVID
I was one of the “lucky ones” that got Covid before we even knew it was circulating.
In context ↗
Summary
Cardinal 50207 caught COVID in early 2020 and developed long COVID, having already had severe chronic migraines and IBS-C. Reinfected twice, most recently with Omicron in May 2022, they had very low blood pressure and heart rate and feared they would not survive the night. Each round took less time to turn: nearly a year, then four months, then two. By late July 2022 they could leave the house but still had a long way to go.
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What they tried
What they credit
Their words about each treatment
- Spoon Theory · Helped
Spoon Theory helps me a lot expecially in times like this. You have to save your spoons for the activities that will help you get better and not waste them on the things that make you feel worse.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.2 years after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | COVID before it was known to be circulating; became a long haulerI was one of the “lucky ones” that got Covid before we even knew it was circulating.In context ↗ | Not stated |
| 11 mo | turned the corner after the first roundMy first round took me almost a year to turn the cornerIn context ↗ | Not stated |
| — | second round turned around in about four monthsmy 2nd round about 4 monthsIn context ↗ | Not stated |
| May 2022 | third COVID infection: body in shock with extremely low blood pressure and heart ratewhen I got Covid and L-Covid in May for the 3rd time ... my body was in shock with an extremely low BP and HRIn context ↗ | Severe |
| July 2022 | strong enough to leave the house to get lab workuntil I was finally strong enough to be able to leave the house 2 months laterIn context ↗ | Moderate |
| 2022-07-28 | symptoms less severe than earlier rounds but still a long way to gothis last time with Omicron, the symptoms are not as severe ... I still have a long way to goIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I had severe chronic migraines and IBS-C before Covid
In context ↗ - POTS & dysautonomia
each time C made my GI, Migraines, and Autonomic Nervous System malfunction
In context ↗ - Light & noise sensitivity
I can relate to the GI and Sensory Overload stuff.
In context ↗ - Pain & fibromyalgia
how to Aleve the excruciating amount of pain I was in
In context ↗
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