Lifelong worsening ME/CFS and rhinitis, somewhat better with cannabis and ADHD meds
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- entire life
- Last post
- Apr 2020
In their words
- Condition: ME/CFS
My CFS is postural in origin.
In context ↗ - Now: Somewhat better
My fatigue has multiple additive factors ... the two help me tonnes.
In context ↗ - Began after: nothing they could name
I've had undiagnosed progressively worsening CFS my entire life.
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
A Reddit user in r/cfs said he had undiagnosed, progressively worsening CFS his whole life, with lifelong rhinitis and a nose that closed at night. Upper cervical chiropractic adjustments alleviated his symptoms but didn't hold, and all the ME symptoms rushed back each time the adjustment released. He did his own physical therapy of yoga, tai-chi, aerobic exercise and weightlifting and said cannabis and ADHD medication helped his fatigue a lot.
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What they tried
What they credit
Also tried
Their words about each treatment
- GermGuardian air purifier · Not said
I live in a very old house and best purchase ever.
In context ↗ - melatonin · Not said
I personally hate it but I know I'm in the minority here.
In context ↗ - upper cervical technique chiropractor · Helped
Every time I get an adjustment from an upper cervical technique chiropractor. ... Symptoms were able to be alleviated by a upper cervical chiropractor.
- Beconase · Helped
Beconase is my best buddy!
In context ↗ - self-directed physical therapy (yoga, tai-chi, aerobic exercise and weightlifting) · Not said
I'm currently doing my own self-directed physical therapy composed of yoga, tai-chi, aerobic exercise and weightlifting.
In context ↗ - cannabis · Helped
that’s where cannabis and ADHD medication come into play ... the two help me tonnes.
In context ↗
Approaches: Other drugs and medicines · Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | undiagnosed CFS he says he has had his entire lifeI've had undiagnosed progressively worsening CFS my entire life.In context ↗ | Not stated |
| 2019-02-01 | felt close to normal after an upper cervical chiropractic adjustmentEvery time I get an adjustment from an upper cervical technique chiropractor.In context ↗ | Near normal |
| 2019-02-01 | ME symptoms rushed back when the adjustment releasedwhen it releases, all the ME symptoms come rushing back.In context ↗ | Not stated |
| 2019-09-10 | self-directed physical therapy; symptoms alleviated by an upper cervical chiropractorI'm currently doing my own self-directed physical therapy composed of yoga, tai-chi, aerobic exercise and weightlifting.In context ↗ | Mild |
| 2020-04-26 | cannabis and ADHD medication helping his fatiguethe two help me tonnesIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
the inability to breath through my nose while sleeping was a major one
In context ↗
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