ME/CFS with POTS and temperature sensitivity, now much better; shower stool eased showers
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Aug 2025
In their words
- Now: Much better
pre-pandemic I was in a once-a-week karate class that worked very well for me
In context ↗
Summary
Their ME/CFS management includes medications, pacing, a high-salt diet for POTS/NMH, physical therapy and limited exercise such as a weekly karate class. A shower stool later made showering much easier, and they remained temperature-sensitive with POTS.
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What they tried
What they credit
Also tried
Their words about each treatment
- Atenolol · Not said
I take Atenolol to treat it
In context ↗ - high-salt diet · Helped
I’m on a high-salt diet to help manage my NMH/POTS
In context ↗ - moving slowly through transitions · Not said
moving slowly through transitions (sitting to standing, etc.)
In context ↗ - Fitbit · Not said
I monitor my heart rate using a Fitbit
In context ↗ - deep breathing techniques · Not said
use deep breathing techniques if it gets too high
In context ↗ - pacing · Helped
A lot of my management is pacing as well - I tend to use the spoons analogy.
In context ↗ - limited exercise · Helped
a once-a-week karate class that worked very well for me
In context ↗ - physical therapy · Not said
I go to physical therapy to help with my back and joint pain.
In context ↗ - shower stool · Helped a lot
Using a shower stool was a game changer for me.
In context ↗
Approaches: POTS medication · Exercise and activity · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021-04-04 | managing symptoms with pacing, diet, limited exercise and physical therapyA lot of my management is pacing as well ... I'm on limited exercise - pre-pandemic I was in a once-a-week karate class that worked very well for me.In context ↗ | Mild | Pacing and the energy envelope |
| 2025-08-13 | shower stool made showering easier; still temperature-sensitive with POTSUsing a shower stool was a game changer for me. I'm very temperature-sensitive and also have POTS, so being able to sit while showering hugely improved my quality of life.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Finally, I go to physical therapy to help with my back and joint pain.
In context ↗ - POTS & dysautonomia
I'm on a high-salt diet to help manage my NMH/POTS
In context ↗ - Heart symptoms & palpitations
I take Atenolol to treat it, but maintaining a relatively high-salt diet, moving slowly through transitions (sitting to standing, etc.), and keeping an eye on my heart rate are also important.
In context ↗ - Temperature regulation
I'm very temperature-sensitive
In context ↗ - Post-exertional malaise
If I know I'm going to be doing something planned I make sure I take it easy in the days leading up to it.
In context ↗
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