ME/CFS
Moderate → no benefit
Moderate ME/CFS with akathisia, worse after lymph node massage, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
It’s hell because reading is such a great escape from the torture that is this illness.
In context ↗ - At worst: Moderate
I was still moderate level at this time.
In context ↗ - Now: No benefit
I gave myself a lymph node massage about 10 days ago thinking this would help me and since then I’ve been worse across the board.
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Cove 59437 has had moderate ME/CFS, with bouts of akathisia that propranolol eventually stopped. Years ago a bad akathisia episode was followed by days of much better function with no PEM, then a return to baseline. In June 2026 a lymph node massage left them worse across the board, and by July mental crashes cut reading to 5-6 pages a day, with screen sensitivity, increased heart rate and anxiety.
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What they tried
Also tried
Their words about each treatment
- Propranolol · Helped
Propranolol eventually made the akathisia go away completely.
In context ↗ - mindfulness meditation · Worse
Recently I had been trying mindfulness meditation after many years of not doing it, and this also started setting off my heart along with all kinds of weird anxiety issues.
In context ↗ - Fluoxetine · Not said
I am on a fairly low dose of Fluoxetine and am considering lowering the dose even more to see how this will affect me.
In context ↗ - prayer to Aphrodite · Not said
I pray to Aphrodite a lot.
In context ↗ - slowly increasing reading · Not said
I just slowly start reading again with a few pages a day, slowly increasing the number of pages.
In context ↗ - lymph node massage · Worse
I gave myself a lymph node massage about 10 days ago thinking this would help me and since then I’ve been worse across the board.
In context ↗ - pill broken up (unidentified) · Worse
I tried it for a while but was only able to get the pill, so I was breaking the pills up as best as I could. ... I ended up having a weird reaction one night and went off of it.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a few years before 2026 | moderate ME/CFS with recurring bouts of akathisiaI was still moderate level at this time.In context ↗ | Moderate |
| a few years before 2026 | after a bad akathisia trigger, several days of much better function with no PEMsomehow was basically able to function a lot better for several days with no PEMIn context ↗ | Mild |
| a few years before 2026 | returned to usual baseline shortly afterThings went back to normal soon enough though.In context ↗ | Moderate |
| June 2026 | worse across the board after a self-given lymph node massageI gave myself a lymph node massage about 10 days ago thinking this would help me and since then I’ve been worse across the board.In context ↗ | Moderate |
| July 2026 | another mental crash cut reading downA few weeks ago I was knocking out a good 45-50 pages a day, but now after having another crash I am only able to read 5-6 pages.In context ↗ | Moderate |
| July 2026 | mindfulness meditation set off heart rate and anxietyRecently I had been trying mindfulness meditation after many years of not doing it, and this also started setting off my heart along with all kinds of weird anxiety issues.In context ↗ | Moderate |
Adverse events
- Manual lymphatic drainage“I gave myself a lymph node massage about 10 days ago thinking this would help me and since then I’ve been worse across the board.” In context ↗ Made symptoms worse
- Meditation, yoga, breathwork“Recently I had been trying mindfulness meditation after many years of not doing it, and this also started setting off my heart along with all kinds of weird anxiety issues.” In context ↗ Heart rhythm problems
- Meditation, yoga, breathwork“I used to meditate a lot, which I have been forced to stop due to it making my mental state worse” In context ↗ Mood or psychiatric effects
- “I tried it for a while but was only able to get the pill, so I was breaking the pills up as best as I could. But I ended up having a weird reaction one night and went off of it.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
When I have a mental crash, I have to stop reading for a bit. It has nothing to do with my fatigue, just my brain acting up
In context ↗ - Light & noise sensitivity
I have been having very serious screen sensitivity again
In context ↗ - Heart symptoms & palpitations
it makes my heart rate go way up if I use the phone too much
In context ↗