Long COVID
Moderate → no benefitIll for 2.5 yearsNeeds ongoing treatment
Long COVID with fatigue and brain fog, still uses a walking stick, no improvement
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 2.5 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
has come back at times during my 2.5 years of LC
In context ↗ - At worst: Moderate
has acted as a handy visual flag to folks that I might walk a bit slower, would love to sit down where possible
In context ↗ - Now: No benefit
while my experience of the infection was less bad than before, I absolutely do not feel better from LC
In context ↗ - Began after: COVID
Well I did end up being reinfected, three weeks ago
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
Gull 45468 has had long COVID for about two and a half years, with fatigue, brain fog, lightheadedness and restless legs. A COVID reinfection in October 2023 left their anxiety, low mood and neurological symptoms relapsed; they still use a walking stick and rest a lot. Nicotine patches eased fatigue but only masked it, magnesium helped them sleep, and low-histamine eating, taurine, nattokinase, fasting and infrared gave some gains, with fasting among the biggest.
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What they tried
Also tried
Their words about each treatment
- low histamine diet · Helped
Low histamine diet has served me well but I’m struggling with that at the moment.
In context ↗ - dispersible magnesium · Helped
massively lessened, so I’m able to sleep, when I take my dispersible magnesium before bed. I can’t be without it.
In context ↗ - taurine · Helped
My long covid nurse here recommended taurine and I take that ... That has helped a little.
In context ↗ - nattokinnase · Helped
I’ve also had some improvements with nattokinnase
In context ↗ - getting more sleep · Helped
most of all, getting more sleep (boring) and eating low histamine
In context ↗ - fasting from 7pm-11am · Helped
Fasting from 7pm-11am had one of the biggest effects.
In context ↗ - no caffeine or alcohol · Helped
No caffeine or alcohol at all.
In context ↗ - nicotine patches and under the tongue tablets · Helped
I’ve tried nicotine patches and under the tongue tablets and for me it’s very clear they do seem to ease the fatigue.
In context ↗ - infrared · Helped
Am having some ok results with infrared, though, and just the usual boring lots of rest.
In context ↗ - lots of rest · Helped
just the usual boring lots of rest
In context ↗ - walking stick · Helped
I absolutely did get a walking stick and did and do use it- and it’s helped me loads so I hate the idea that you’d be deterred by comments!
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID began (about July 2021 by their count)my 2.5 years of LCIn context ↗ | Moderate |
| 2023-10-25 | COVID reinfection; anxiety, low mood and neurological symptoms relapsedWell I did end up being reinfected, three weeks ago ... I absolutely do not feel better from LC.In context ↗ | Moderate |
| 2024-02-08 | still using a walking stick, resting a lot, small gains from treatmentsI absolutely did get a walking stick and did and do use it- and it’s helped me loadsIn context ↗ | Moderate |
Adverse events
- Nicotine patches“they also give me some not great side effects like bad dreams” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I overdid it, because I felt better using the nicotine, I’d still crash eventually
In context ↗ - Brain fog
I feel so sad for you and totally relate to that feeling about a loss of self.
In context ↗ - POTS & dysautonomia
I’ve absolutely experienced this lightheadedness!
In context ↗ - Anxiety & low mood
their symptoms of anxiety, low mood, neurological stuff has relapsed totally
In context ↗ - Sleep problems
full-on restless legs which are hideous and stop me sleeping
In context ↗ - Tinnitus
Mine also lasted a bit, then went away, then briefly now resurfaces if I have another infection like a cold or flu.
In context ↗