ME/CFS with PEM and brain fog, somewhat better with rest and nicotine patches
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
Our bodies literally do not work in the same way, just look at how we get PEM.
In context ↗ - At worst: Moderate
Some days, it's the sole reason I can make some food and walk a bit around the house.
In context ↗ - Now: Somewhat better
It's helped my brain fog a lot, even on off dags, and gives me more energy.
In context ↗
Read from 15 of their posts and comments; links to the 9 this page draws on
Summary
Dove 22499 reports ME/CFS with PEM, food intolerances, low blood pressure and brain fog, but gives no onset date. They credit rest, salty water with lemon, nicotine patches, a carnivore/ketovore diet and a TENS unit for improvement, especially nicotine patches for brain fog and energy. By September 2024 they could do mental arithmetic, up from not remembering a 4-digit number at a September 2023 hospital eval, but used salt water and compression.
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What they tried
What they credit
Their words about each treatment
- rest · Helped
they've really helped me and I'm not sure why ... 1. rest
In context ↗ - very salty water with lemon juice · Helped
a lot of water with A LOT table salt and some lemon juice
In context ↗ - nicotine patches · Helped a lot
I truly believe nicotine patches are the main reason I can do simple multiplications in my head now
In context ↗ - carnivore/ketovore · Helped
carnivore/ketovore, high clean animal products, some fruit, very limited veggies, no gluten, sugar, processed foods, limited dairy
In context ↗ - TENS unit for vagus nerve · Helped
TENS unit for vagus nerve
In context ↗ - AIP · Not said
After getting sick and starting AIP in Sep of last year, I have absolutely found out that I, like many others, react badly to certain foods.
In context ↗ - electrolyte sachets from the pharmacy · Helped
I tried 2 types available here at the pharmacy and they aren't as effective as the salty water + lemon juice.
In context ↗ - compression socks · Helped
Compression socks. Not standing if I can avoid it, I sit to shower, brush my teeth, make food, all the things lol.
In context ↗ - cold plunge · Not said
I did cold plunge in december but unsure if it helped.
In context ↗
Approaches: POTS medication · Diet · Pacing · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | became illbefore I got sick ... After getting sickIn context ↗ | Not stated | |
| September 2023 | hospital evaluation; could not remember a 4-digit numbernot even being able to remember a 4 digit number last september during a hospital evalIn context ↗ | Moderate | |
| 2024-06-09 | reported improvement from rest, salt water, nicotine patches, diet and TENSthey've really helped me and I'm not sure why.In context ↗ | Moderate | |
| 2024-09-06 | nicotine patches improved brain fog and energy; mental arithmetic possiblenicotine patches are the main reason I can do simple multiplications in my head nowIn context ↗ | Moderate | Nicotine patches |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
salt water to help me out of PEM or avoid PEM
In context ↗ - Brain fog
It's helped my brain fog a lot
In context ↗ - POTS & dysautonomia
I have low blood pressure.
In context ↗
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