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Long COVID Severe → somewhat betterIll 1 year before improving or writingNeeds ongoing treatment

Long COVID with fatigue and breathlessness, somewhat better after first Moderna shot

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Apr 2021
In their words
  • Condition: Long COVIDI've been on gabapentin for ages, it has done absolutely nothing for my long C19. In context ↗
  • At worst: SevereIt took a month of home treatment to get out of bed. In context ↗
  • Now: Somewhat betterMy breathing improved after my first vaccine shot 16 days ago. Hugely, the first 3 days, then my normal longhaul cycle started but it's MUCH better. In context ↗
  • Began after: COVIDI have had ongoing C19 symptoms since contracting the virus in mid-March 2020.
Read from 6 of their posts and comments; links to the 4 this page draws on

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Summary

An uninsured woman in Texas fell ill with COVID-19 in mid-March 2020 and spent a month in bed before she could get up. A year later she still could not walk any distance because of shortness of breath and had extreme fatigue. Her first Moderna shot in March 2021 made breathing much easier at once, hugely for three days, and though her long-haul cycle returned she said it was much better.

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What they tried

Their words about each treatment
  • gabapentin · No changeI've been on gabapentin for ages, it has done absolutely nothing for my long C19. In context ↗
  • Moderna · HelpedMy breathing improved after my first vaccine shot 16 days ago. Hugely, the first 3 days, then my normal longhaul cycle started but it's MUCH better. In context ↗
  • Zyrtec · HelpedZyrtec is also a must for me but fuck the desert is possibly why In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
mid-March 2020COVID-19, bedbound for a monthIt took a month of home treatment to get out of bed. In context ↗Severe
March 2021breathing improved the morning after Moderna dose 1I slept awhile and woke with one hell of a sore left arm... and an increased ability to breathe. In context ↗ModerateCOVID vaccination as treatment
2021-04-04breathing still much better but long-haul symptoms continuemy breathing improved after my first vaccine shot 16 days ago. Hugely, the first 3 days, then my normal longhaul cycle started but it's MUCH better. In context ↗MildCOVID vaccination as treatment

Adverse events

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI can't walk any distance because of SOB, and I'm only 41 In context ↗
  • Loss of smell or tasteeverything tasted like burnt plastic In context ↗

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