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ME/CFS Severe → relapsedNeeds ongoing treatment

Bedridden with ME/CFS, improved with Perrin technique then worsened after losing it

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Oct 2025
In their words
  • Condition: ME/CFSEven though this illness has slowed me down In context ↗
  • At worst: SevereI never realised how bad my mental health was until I was bed ridden. In context ↗
  • Now: RelapsedSince not having those sessions my health has declined again and my symptoms worsened. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with ME/CFS was bedridden at their worst, with their state cycling between worse and better. An osteopath using the Perrin technique for two to three years, at £30 a session, gave huge relief from pain and exhaustion, though not a cure. After moving and losing that practitioner, their health declined and symptoms worsened again. Therapy and a wheelchair also helped mood, energy and getting out.

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What they tried

Their words about each treatment
  • perrin technique · Helped a lotit did make a huge difference for my symptoms. Not a cure or anything, but relief from pain and exhaustion. In context ↗
  • therapy · HelpedI got therapy and became a much better and more stable person. In context ↗
  • wheelchair · Helpedas soon as I caved and got one I couldn't be happier! I have more energy to go out and spend time with friends and do activities. In context ↗

Approaches: Alternative therapies

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—bedridden, forced to face past traumasI never realised how bad my mental health was until I was bed ridden. In context ↗Severe
—weekly osteopath sessions with the Perrin technique gave relief from pain and exhaustionit did make a huge difference for my symptoms. Not a cure or anything, but relief from pain and exhaustion. In context ↗ModeratePerrin Technique
2025-02-05therapy for mental health and past traumaI got therapy and became a much better and more stable person. In context ↗Not statedCBT and psychotherapy
2025-02-26got a wheelchair, more energy to go out with friendsI have more energy to go out and spend time with friends and do activities. In context ↗Moderate
2025-10-12decline after moving and losing access to the osteopathSince not having those sessions my health has declined again and my symptoms worsened. In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiarelief from pain and exhaustion In context ↗
  • Anxiety & low moodI never realised how bad my mental health was until I was bed ridden. In context ↗

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