Long COVID with PEM, severe GI pain and insomnia, much better after B12 and B1
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
Sick with LC from Covid and terrible long term inflammatory reaction from the 3 vaccines I got
In context ↗ - Now: Much better
my energy levels are like they have never been even prior to my first 2020 covid. I am still getting insomnia, hard/small poops, and abdominal pain here and there
In context ↗ - Began after: COVID
it was after a “very mild” Covid that everything went down hill
Read from 32 of their posts and comments; links to the 15 this page draws on
Summary
After a very mild Covid in June 2022 they declined steadily for two years with PEM, POTS-like heart and blood-pressure swings, severe GI pain, weight loss and insomnia, plus swollen lymph nodes from August 2023. Reflux and mouth burning worsened after antibiotics for a cough. In September 2024 B12, B1, folic acid, betaine HCl, magnesium and propolis brought rapid improvement and better energy, though insomnia and constipation persisted.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Cefuroxime and other antibiotics · Worse
these antibiotics are wiping me out and I feel pain in my liver/back area
In context ↗ - corticosteroids · Helped
they gave me corticosteroids and it seemingly resolved
In context ↗ - exercise · Worse
when I started feeling sick, o exercised more thinking it would help
In context ↗ - diet · Helped
I did changed entirely my diet and that has helped some.
In context ↗ - Rifaximin · Worse
a course of Rifaximin, and by pumping probiotics. Matters just got progressively worse
In context ↗ - PPI (Pantoprazole) · Worse
just take PPI (Pantoprazole) which I did for a week making my pain so much worse/acute and intolerable
In context ↗ - omeprazole · No change
Tried omeprazole and did not help.
In context ↗ - Famotidine · Helped
Doing Famotidine (40 mg) is the highest doses per day without prescription
In context ↗ - Gaviscon Advanced · Helped
then Gaviscon Advanced (which relieved it for 2 hours only)
In context ↗ - organic digestive enzymes · Helped
My mouth burning has improved in the last week since using Gaviscon and enzymes
In context ↗ - zinc · Helped
I was also taking zinc and that was helping reduce the lymph nodes
In context ↗ - B12 sublingual (methylcobalamin) · Helped a lot
I started taking b12 sublingual. Truly amazingly a week after I recovered my muscle that I lost 2 years ago
In context ↗ - B complex · Not said
I’m also taking B complex orally.
In context ↗ - Betaine HCL · Helped
Then I added Betaine HCL!!! Things started to turn for better
In context ↗ - propolis spray (Propoleo) · Helped a lot
to sooth my throat I started propoleo. OMG!!!
In context ↗ - magnesium glycinate · Not said
Then, I added a better version of magnesium to the one I was using. Glycinate.
In context ↗ - vitamin D3 · Not said
My D3 (4000 IU a day) is emulsified too.
In context ↗ - folic acid · Not said
And now adding cofactor Folic acid.
In context ↗ - Doxycycline (Vibramycin) · Worse
I actually blame doxy and long-term antibiotics treatment for Lyme I received 15 years ago, for how poorly I came out from my mild Covid bout in 2022.
In context ↗ - COVID vaccination as treatment · Worse
second sent me to hospital because the headache was so strong, I had severe neck pain
In context ↗
Approaches: Alternative therapies · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June 2022 | very mild Covid, then steady declineAfter 2 years of PEM/CFS, high/low BP, low/high HR, weight loss, severe GI pain for 11 monthsIn context ↗ | Moderate | |
| August 2023 | caught a cold/Covid from husband; fatigue, dizziness and swollen lymph nodesin August 2023 I caught another “cold” ... and my fatigue went insane, along with severe bouts of dizzinessIn context ↗ | Moderate | |
| August-September 2024 | severe GERD and burning mouth after antibioticsI could not talk from the painIn context ↗ | Moderate | |
| September 2024 | rapid improvement on B vitamins, betaine HCl, magnesium and propolismy energy levels are like they have never been even prior to my first 2020 covidIn context ↗ | Mild | Vitamin B12 |
Adverse events
- Cefuroxime (Ceftin)“these antibiotics are wiping me out and I feel pain in my liver/back area” In context ↗ Liver or kidney problems
- Doxycycline (Vibramycin)“I actually blame doxy and long-term antibiotics treatment for Lyme I received 15 years ago, for how poorly I came out from my mild Covid bout in 2022.” In context ↗ Made symptoms worse
- Everyday exercise and activity“when I started feeling sick, o exercised more thinking it would help.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“second sent me to hospital because the headache was so strong, I had severe neck pain” In context ↗ ER visit
- COVID vaccination as treatment“It sent me 6 days to hospital in November 2021.” In context ↗ Hospitalisation
- COVID vaccination as treatment“I did though had a severe headache that became significantly worse with each booster” In context ↗ Side effects
- COVID vaccination as treatment“All gave me severe brain inflammation reaction and tinnitus.” In context ↗ Autoimmune or inflammatory flare
- Cefuroxime (Ceftin)“my reflux came with vengeance.” In context ↗ Made symptoms worse
- Cefuroxime (Ceftin)“I could only finish 6 days before falling way too weak, toosick.” In context ↗ Made symptoms worse
- Cefuroxime (Ceftin)“I developed a coat over my tongue and we thought it was candida from the antibiotics.” In context ↗ Gut side effects
- Pantoprazole (Protonix)“PPI (Pantoprazole) which I did for a week making my pain so much worse/acute and intolerable and my poop/digestion so much worse” In context ↗ Made symptoms worse
- Pantoprazole (Protonix)“I could not take long as it caused pale poops and I freaked” In context ↗ Gut side effects
- Zinc“the methyl version made the GERD much worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
After 2 years of PEM/CFS
In context ↗ - POTS & dysautonomia
high/low BP, low/high HR
In context ↗ - Mast cell (MCAS) & allergies
sudden severe food allergies
In context ↗ - Sleep problems
I am still getting insomnia
In context ↗ - Gut problems
severe IBS (constipation and diarrhea)
In context ↗ - Headaches & migraine
First gave me a headache that did not resolve in over a week
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Heart symptoms & palpitations
severe palpitations
In context ↗ - Muscle weakness
muscle weakness
In context ↗ - Anxiety & low mood
abnormal anxiety
In context ↗ - Tinnitus
All gave me severe brain inflammation reaction and tinnitus
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
Long COVID with dizziness, headaches and panic, now much better with probiotic and raw honey
A woman in Germany tested positive in January 2022 and got long COVID symptoms about four weeks later, with dizziness, headaches, nausea, vision disturbances, hives, chest pain and panic attacks; she was at the ER every ten days and could not work or care…
-
Moderate ME/CFS, now mild with supplements and chocolate for POTS
Someone with ME/CFS described being moderate, unable to stand more than 10 minutes and getting PEM from brushing their teeth. A combination of supplements — liposomal vitamin C, Korean ginseng, bee products, elderberry, NADH with CoQ10 and sublingual B12 —…
-
Stinging Her Way Back to Health
Nancy became ill with chronic fatigue syndrome in 1994. She credits bee venom therapy, which she says is not a cure but helped her get her life back, and vitamin B12 for getting back to normal. Hypnotherapy, guided meditation and visualisation helped her…
-
Not enough detail to draw a path
Daily nerve pain and brain fog with long COVID, much better after deficiencies corrected
Alpine 75964, a 25-year-old woman, fell ill with COVID in July 2024 and was in pain daily, with nerve pain, brain fog, anxiety and intrusive thoughts. Correcting deficiencies, antihistamines, aspirin, probiotics and other supplements improved her step by…