ME/CFS
No benefit
Very tired with ME/CFS, still very tired; flush niacin gave only brief relief
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Dec 2022
In their words
- Condition: ME/CFS
I am still very tired and my muscle feel like pudding, but this heavy fatigue and flu feeling goes away at least for around 60mins
In context ↗ - Now: No benefit
I am still very tired and my muscle feel like pudding, but this heavy fatigue and flu feeling goes away at least for around 60mins
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
High-dose flush niacin (about 1,000–1,500 mg on an empty stomach) gave about 60 minutes of relief from heavy fatigue and a flu-like feeling whenever a strong flush came, while no-flush nicotinamide did nothing for them. Sublingual NADH, up to 80 mg with 250 mg CoQ10, did nothing at all. They stayed very tired, with muscles that felt like pudding, and had cold hands and feet.
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What they tried
Also tried
Niacin with flush (nicotinic acid)· HelpedNo-flush niacin (nicotinamide)· No changeNADH sublingual dragees· No changeQ10· No change
Their words about each treatment
- Niacin with flush (nicotinic acid) · Helped
I always feel way better for about 60 mins
In context ↗ - No-flush niacin (nicotinamide) · No change
The no flush Niacin does nothing for me.
In context ↗ - NADH sublingual dragees · No change
Tried 20mg, up to 80mg at once with 250mg Q10. Did nothing at all.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | ongoing heavy fatigue and flu-like feelingthis heavy fatigue and flu feeling goes away at least for around 60minsIn context ↗ |
| 2022-12-01 | still ill with heavy fatigue and weak muscles; only brief 60-minute relief from flush niacinI am still very tired and my muscle feel like puddingIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I am still very tired and my muscle feel like pudding
In context ↗ - Flu-like symptoms
this heavy fatigue and flu feeling goes away at least for around 60mins
In context ↗ - Temperature regulation
I have lots of problems too with cold feet and hands.
In context ↗