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Long COVID Somewhat better

Long COVID symptoms piling up, a bit better on ivermectin and antiviral

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Apr 2026
In their words
  • Condition: Long COVIDI was diagnosed with Long Covid last fall by an immunologist. In context ↗
  • Now: Somewhat betterStill rebuilding. ... I finally have some energy, even with crappy sleep.
  • Began after: COVIDI had labs done that showed the SARS-Cov-2 proteins in my blood as well as highly elevated AB levels/spike proteins
Read from 7 of their posts and comments; links to the 6 this page draws on

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Summary

Lynx 69726 had fibromyalgia before long COVID was diagnosed by an immunologist in autumn 2024, and went on short-term disability and later quit their job as symptoms and job stress piled up. About a week and a half into a month of ivermectin plus an EBV antiviral they felt a bit better, though they had also taken medical leave; by 2026, they were on week three of adding testosterone to estrogen and progesterone and hoped it would help, finally having some energy despite poor sleep.

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Asking aboutLynx 69726’s story

What they tried

What they credit

Their words about each treatment
  • CPAP · No changeI feel like my CPAP doesn’t do much at all for the fatigue In context ↗
  • ADHD meds · Helpedwas on meds for it for a while. It helped a lot! In context ↗
  • anxiety meds · Not saidI was also on anxiety meds In context ↗
  • a sleep med · Not saidneeded a sleep med In context ↗
  • Cymbalta · Not saidI am dealing with the aftermath of Cymbalta now In context ↗
  • nattokinase · Not saidThis is motivating to re-try ADHD meds (and nattokinase) again. In context ↗
  • Ivermectin · HelpedI’m about a week and a half into a month of treatment ... and I am feeling a bit better In context ↗
  • an antiviral for EBV activation · Not saidplus an antiviral for EBV activation simultaneously In context ↗
  • TMS · Not saidbeginning TMS for treatment-resistant depression In context ↗
  • estrogen/progesterone · Not saidI’m on week three of adding testosterone to the estrogen/progesterone In context ↗
  • testosterone · Not saidI’m on week three of adding testosterone to the estrogen/progesterone and hopeful that will help with motivation In context ↗
  • COVID vaccination as treatment · Not saidI actually got hives by the time I got back to the car after my first vaccine booster shot. And I’ve been getting them spontaneously since. In context ↗

Approaches: Stimulants

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—long COVID, later diagnosed by an immunologistI had Fibromyalgia before the Long COVID was DXed In context ↗Not stated
2024-10felt a bit better on ivermectin plus an EBV antiviral while on medical leaveI’m about a week and a half into a month of treatment ... and I am feeling a bit better In context ↗Not statedIvermectin
2024short-term disability, quit job, life spiraledmy life spiraled. Ended up quitting my job after getting on short-term disability and not being able to go back In context ↗Moderate
2026-04-18adding testosterone to estrogen and progesterone, some energy despite poor sleepI am hoping the testosterone is the missing piece, as I finally have some energy, even with crappy sleep In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemseven with crappy sleep In context ↗
  • Sleep problemsI got diagnosed with alpha intrusions (brain awakening enough to disrupt sleep) with a sleep study in my 20s In context ↗
  • Pain & fibromyalgiaI had Fibromyalgia before the Long COVID was DXed In context ↗
  • Mast cell (MCAS) & allergiesI actually got hives by the time I got back to the car after my first vaccine booster shot. And I’ve been getting them spontaneously since In context ↗
  • Anxiety & low moodbeginning TMS for treatment-resistant depression In context ↗

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