Long COVID
Moderate → relapsedIll 4 years before improving or writing
Long COVID fatigue and brain fog improved on tamoxifen, then relapsed after stopping
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Apr 2024
In their words
- Condition: Long COVID
i believed i had long covid, but seem similar to cfs
In context ↗ - At worst: Moderate
Extreme fatigue (i can stay up for few hrs but then suddenly in a second i feel exhausted and need to lay down and sleep)
In context ↗ - Now: Relapsed
after about a week all my symptoms disappeared ... As soon as i stopped tamoxifen my symptoms came back ... Unfortunately i still have the same symptoms, 4 years now
In context ↗ - Began after: COVID
All my symptoms started after the covid pandemic ( i believed i had long covid, but seem similar to cfs)
Summary
A 27-year-old man's extreme fatigue, headaches, brain fog, nausea and PEM began in 2020, resembling long COVID or ME/CFS; he was never diagnosed. Six months of supplements and diets did nothing. Low-dose tamoxifen, 3 mg every other day, restored his pre-illness energy within a week, but he stopped after three months over raised blood pressure and bulging veins, and symptoms returned. Clomid gave only a small boost; he remained ill four years on.
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What they tried
Also tried
Tamoxifene· Helped a lot · wore offevery supplement / diet type· No changeClomid· No changeamytriptilline· Worse
Their words about each treatment
- every supplement / diet type · No change
for the first 6 months i tryed every supplement / diet type without any success
In context ↗ - Tamoxifene · Helped a lot
after about a week all my symptoms disappeared, i was at my pre-illness energy
In context ↗ - Clomid · No change
i experienced a small energy boost but would still have pem and fatigue, keep doing for almost a month whit no further changes
In context ↗ - amytriptilline · Worse
i dropped it cause i was feeling like a zombie and had episosed of irregular heartbeat at the lowest dosage possible
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | symptoms began after the covid pandemic: extreme fatigue, headaches, brain fog, nausea, PEMExtreme fatigue (i can stay up for few hrs but then suddenly in a second i feel exhausted and need to lay down and sleep)In context ↗ | Moderate |
| 2020, about six months into illness, about a week after starting tamoxifen | all symptoms disappeared on low-dose tamoxifen; pre-illness energyafter about a week all my symptoms disappeared, i was at my pre-illness energy, i could work for 16 hours without feeling tired at allIn context ↗ | Recovered |
| three months after starting tamoxifen | stopped tamoxifen because of side effects and symptoms returnedAs soon as i stopped tamoxifen my symptoms came backIn context ↗ | Moderate |
| about a month later, on Clomid | small energy boost on Clomid but PEM and fatigue persistedi experienced a small energy boost but would still have pem and fatigueIn context ↗ | Moderate |
| 2024-04 | still has the same symptoms four years onUnfortunately i still have the same symptoms, 4 years nowIn context ↗ | Moderate |
Adverse events
- “i decided to drop it cause it was giving me weird side effects like increased blood pressure and my veins were enlarged” In context ↗ Side effects
- Amitriptyline (Elavil)“i dropped it cause i was feeling like a zombie” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“had episosed of irregular heartbeat at the lowest dosage possible (liquid form 1 drop” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
headache 1-2 times a week (sometime chronic)
In context ↗ - Brain fog
brain fog / difficulty concentrating
In context ↗ - Gut problems
for a few months had digestive issue / stomach pain
In context ↗