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ME/CFS Outcome unclear

ME/CFS: balancing movement and rest; full rest eased sore throat but caused aches

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Sep 2026
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Someone with ME/CFS who says they must balance moving enough but not too much. Resting almost entirely for three days eased a sore throat but brought horrible body aches from not moving enough, so they judged full rest no option for them. In September 2026 they warned others about the poor care at their clinic.

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Asking aboutHeron 77007’s story

What they tried

Their words about each treatment
  • doing very little for 3 days - only lying down and watching TV and resting · WorseIt improved my sore throat but I had horrible body aches from not moving enough. So certainly for me not an option In context ↗

Adverse events

  • Radical rest“I made myself do very little for 3 days - only lying down and watching TV and resting. It improved my sore throat but I had horrible body aches from not moving enough.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsIt improved my sore throat In context ↗
  • Pain & fibromyalgiaI had horrible body aches from not moving enough In context ↗

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Asking aboutHeron 77007’s story

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