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Long COVID Moderate → somewhat betterIll 11 months before improving or writing

Winded walking a minute or two with long COVID, now somewhat better with gym and diet

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
11 months
Last post
Mar 2021
In their words
  • Condition: Long COVIDI was sadly relieved when they started talking about long haulers cause I have been going through this for almost a year In context ↗
  • At worst: Moderateit was the start if June before I could really walk for more than a minute or two without being winded In context ↗
  • Now: Somewhat betterI do finnaly feel like I'm making progress ... I still have weeks where I'm basically useless
  • Began after: COVIDon March 19 2020 I was tested for covid and came up positive
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

After testing positive for COVID-19 in March 2020, they could walk only a minute or two without being winded until about June, with chest pain, heart rate up to 182 bpm, dizziness, diarrhoea and weight loss. From early 2021 they credited the gym and better eating, and by late February 2021 could run three minutes at a time and cover a mile total in about 25 minutes, though chest pressure persisted most of the time and some weeks left them 'basically useless'.

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What they tried

Also tried

eating better· Helpedstopping Facebook and the news· Helpednapping and getting extra sleep· Helped
Their words about each treatment
  • going to the gym, treadmill, running and lifting · HelpedI have been going to the gym ... that helps In context ↗
  • eating better · HelpedI have been going to the gym eating better and just in general taking better care f myself and that helps In context ↗
  • stopping Facebook and the news · HelpedI've stopped looking at Facebook and the news it has been helping with the anxiety In context ↗
  • napping and getting extra sleep · Helpedalso napping and getting extra sleep instead of the 4 to 5 hours I usually get total In context ↗

Approaches: Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 19 2020COVID-19; for months could not walk more than a minute or two without being windedon March 19 2020 I was tested for covid and came up positive it was the start if June before I could really walk for more than a minute or two without being winded In context ↗Moderate
June 2020able to walk more than a minute or twoit was the start if June before I could really walk for more than a minute or two without being winded In context ↗Moderate
2021-02-26gym and better eating; could run 3 minutes and walk a mile in about 25 minutessince I have been going to the gym and eating better I can run for 3 min at a time and walk for 5 ish to cool off I can do a mile total in about 25 mins In context ↗MildEveryday exercise and activity
2021-03-03feels a little better after running and lifting; chest pressure still most of the timeso far nothing has helped the healthier I get the less i have it but I still have it 85% plus of the time no burning but some pains In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI've overdone it before and paid for a few days after though In context ↗
  • Breathlessnessit was the start if June before I could really walk for more than a minute or two without being winded In context ↗
  • Heart symptoms & palpitationsmy heart rate randomly goes crazy while I'm lying down the worst one was 182 bpm In context ↗
  • POTS & dysautonomiaI'm dizzy sometimes In context ↗
  • Temperature regulationim always cold ... I'm cold all the time In context ↗
  • Gut problemsI have diarrhea fairly regularly and stomach cramps quite a bit In context ↗
  • Loss of smell or tastemy sense of taste is really fucked up some of the things I used to enjoy taste terrible now In context ↗
  • Anxiety & low moodI still have days where I'm so fucked up it sends me into a full blown panick In context ↗
  • Sleep problemsnapping and getting extra sleep instead of the 4 to 5 hours I usually get total In context ↗

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