Long COVID with breathlessness and chest pain, nearly back to normal after Vedicinals 9
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Jun 2024
In their words
- Condition: Long COVID
I myself am just coming to (hopefully) the end of a year long Long Covid battle
In context ↗ - At worst: Mild
I manage to hold down quite a physical job but my LC is episodic (like many people) I can have max 2 good weeks then a symptom flare up
In context ↗ - Now: Near normal
Can live a nearly normal life, do 19k+ steps a day at work, but when I try any sort of high intensity exercise I get chest pain, breathing difficulties for days afterwards
In context ↗ - Began after: COVID
I've said to so many people I would rather have had the initial Covid three times over than what came after, it's a completely different beast.
Read from 43 of their posts and comments; links to the 24 this page draws on
Summary
Pebble 35003 fell ill with long COVID in mid-2022 with debilitating breathlessness, chest pain, dysautonomia and panic attacks, and kept working a physical job. They credited Vedicinals 9, electrolytes, propranolol, NAC and fisetin, and by early 2024 rated themselves 95-99% recovered. High-intensity exercise still brought days of chest pain and breathlessness; a COVID reinfection in August 2023 briefly worsened them before it cleared.
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What they tried
Also tried
Their words about each treatment
- running / cardio · Worse
I seem to decline whenever I do cardio to the point where I'm now scared of it now.
In context ↗ - Vedicinals · Helped a lot
The thing that worked best for me was Vedicinals. It tastes gross but there was a huge improvement in 3-4 days.
In context ↗ - Propanolol · Helped
I take Propanolol as and when I need it, not that regularly and it does help.
In context ↗ - Diazepam · Helped
Also have Diazepam which I find really helpful when my Dysautonomia get really bad.
In context ↗ - Dr Boon's dysautonomia advice on The Long Covid Podcast · Helped a lot
it was the first step in my improvement
In context ↗ - Electrolytes · Helped
What helped me was drinking 3 litres of electrolytes everyday and starting Vedicinals and NAC.
In context ↗ - NAC · Helped
starting Vedicinals and NAC. Made a huge difference
In context ↗ - aspirin · Helped
Trying aspirin and beta blockers, they give temporary relief.
In context ↗ - meditation · Helped
I do find meditation helpful.
In context ↗ - strength training · Not said
Strength training seems fine though.
In context ↗ - Fisetin · Helped
For me personally Fisetin really helped with energy levels.
In context ↗ - mirtazapine · Not said
I take mirtazapine too, but its a right bugger to come off it.
In context ↗ - pre and probiotics · Helped
I had something similar and started taking pre and probiotics, a big help.
In context ↗ - Resveratrol · Not said
I've also been taking Resveratrol, NAC, vit D, Astaxanthin, fisetin and Lactoferrin. I'm still taking them now.
In context ↗
Approaches: POTS medication · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| mid-2022 | Long COVID after Covid: breathlessness, headaches, dizzinessI did a workout on the furst day i felt well. Big mistake. Now have LC.In context ↗ | Mild | |
| 2022-08 | Debilitating breathlessness, chest pain, panic attacks, heart rate 150 doing the washing upMy SOB was debilitating in the first few weeks.In context ↗ | Mild | |
| 2022-09 | Up to about 85% after starting VedicinalsAlso started taking Vedicinals (tastes gross but works for me)which made the biggest difference (got me up to about 85%).In context ↗ | Mild | Vedicinals 9 |
| 2022-10 | Chest pain returned out of nowhere after four weeks on VedicinalsI thought I was pretty much recovered after being on Vedicinals for 4 weeks, then all if a sudden chest pain from nowhereIn context ↗ | Mild | |
| 2023-07 | Crashed after a short run, after three or four weeks symptom freethere was a time when I had no symptoms for about three or four weeks! Went running(not properly, doing 60 seconds on and off) and my breathlessness and chest pain came backIn context ↗ | Mild | |
| 2023-08 | Crashed after running, following nearly two months of feeling brilliantOne time I was convinced as I felt brilliant for nearly two months! Do I started running again and chest pain, breathlessness and anxiety started the day after.In context ↗ | Mild | |
| 2023-11 | Long COVID cleared after a reinfection; called themselves 99% recoveredI would probably call myself 99% recovered, purely based on my little flare up when I lost my job.In context ↗ | Near normal | |
| 2023-11 | Brief symptom flare when they lost their jobonly resurfacing (albeit briefly) when I lost my jobIn context ↗ | Mild | |
| 2024-01 | 95% recovered, reintroducing exercise very slowlyI am now 95% recovered and reintroducing exercise (really, really slowly).In context ↗ | Near normal | |
| 2024-02 | Nearly normal life, 19k steps a day at work, but high-intensity exercise brings days of chest pain and breathlessnessCan live a nearly normal life, do 19k+ steps a day at work, but when I try any sort of high intensity exercise I get chest pain, breathing difficulties for days afterwardsIn context ↗ | Near normal |
Adverse events
- Mirtazapine (Remeron)“I take mirtazapine too, but its a right bugger to come off it.” In context ↗ Withdrawal problems
- Mirtazapine (Remeron)“Tapering now very slowly due to appetite increase.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
when I try any sort of high intensity exercise I get chest pain, breathing difficulties for days afterwards
In context ↗ - Headaches & migraine
Mostly breathlessness, headaches, dizzy
In context ↗ - POTS & dysautonomia
It's not a miracle cure, it still rears it's ugly head from time to time but it's completely manageable.
In context ↗ - Heart symptoms & palpitations
My HR is not too bad now but it used to be horrendous. 150 doing the washing up.
In context ↗ - Anxiety & low mood
the crippling anxiety attacks (btw the ONLY thing that worked for my panic attacks was Diazepam, it was a life saver)
In context ↗ - Post-exertional malaise
I can have max 2 good weeks then a symptom flare up, normally if I've attempted some kind of exercise.
In context ↗ - Sleep problems
I haven't been sleeping great but hadn't put two and two together
In context ↗ - Gut problems
I had something similar and started taking pre and probiotics, a big help.
In context ↗
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