18 years with ME/CFS, now nearly back to normal after B12 injections and CoQ10
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 18 years
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
The CFS reddit helped me to cure my issues. I have been suffering for 18 years.
In context ↗ - Now: Near normal
After reading a thread about vitamin B12 injections a couple of weeks ago I gave it a try 8 days ago. I've since made almost a 100% recovery.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Pond 57405 had been suffering for 18 years, spending tens of thousands on specialists and treatments. After reading about vitamin B12 injections on the CFS subreddit in 2023, they got a B12 injection and reported almost a 100% recovery eight days later. They also credited CoQ10 (ubiquinol and ubiquinone), taken in tiny doses to avoid digestive irritation, and said B12 gave the benefits of B supplements without that irritation.
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What they tried
What they credit
Also tried
Their words about each treatment
- Vitamin B12 injections · Helped a lot
After reading a thread about vitamin B12 injections a couple of weeks ago I gave it a try 8 days ago. I've since made almost a 100% recovery.
In context ↗ - CoQ10 · Helped
The other supplement that helps me is CoQ10, but again I have to limit to very small quantities to avoid digestive issues.
In context ↗ - Vitamin B supplements · Helped
I did have a positive reaction to B vitamin supplements. But the problem was, as with all supplements, it gave me reflux and digestive problems so I couldn’t take it on a regular basis.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | onset of CFSI have been suffering for 18 years.In context ↗ | Not stated |
| 2023-02-17 | almost 100% recovery 8 days after first B12 injectionAfter reading a thread about vitamin B12 injections a couple of weeks ago I gave it a try 8 days ago. I've since made almost a 100% recovery.In context ↗ | Near normal |
| 2023-02-19 | still reporting B12 injections and CoQ10 as what workedHave you tried B12 injections and CoQ10 supplements? They worked for me.In context ↗ | Near normal |
Adverse events
- Vitamin B12, Methylation support (unspecified)“as with all supplements, it gave me reflux and digestive problems so I couldn’t take it on a regular basis” In context ↗ Gut side effects
- CoQ10 / ubiquinol“The other supplement that helps me is CoQ10, but again I have to limit to very small quantities to avoid digestive issues.” In context ↗ Gut side effects
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