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Long COVID Severe → much betterIll 6 years before improving or writing

Bedridden with long COVID fatigue, now far better after CPAP and hyperbaric oxygen

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
6 years
Last post
Sep 2026
In their words
  • Condition: Long COVIDThe worse of my LC were 8 month later. In context ↗
  • At worst: SevereThe 8th month were when my body was totally drained and heavy fatigue got me. I was bedridden for a month, sleeping more than 15h a day. In context ↗
  • Now: Much betteri'm able to live my daily life, thankfully, i'm working on my computer ... I still have some bad days but it's far better now.
  • Began after: COVIDInitial infection on November 2020. In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on

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Summary

A man infected with COVID in November 2020 had six horrible months; at eight months he was bedridden for a month with heavy fatigue, sleeping over 15 hours a day, then PEM hit. CPAP at night for sleep apnoea, built up to nightly use, and ten sessions of hyperbaric oxygen greatly eased his breathlessness over about six months. A 2022 reinfection brought symptoms back; by 2024 he was far better and working on a computer, though exercise intolerance remained and he later reported dizziness and intrusive thoughts.

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What they tried

Also tried

Their words about each treatment
  • peppermint oil · Helpedi used peppermint oil to get like one hour of peace. ... Mint was powerfull on me, and ease the pain. In context ↗
  • antioxidant pills (a combo of tea, selenium, coQ10 and chrome) · Worsewhen i took pills, it does interract with my LH Covid and trigger me headaches everyday In context ↗
  • sport training (swimming) · Helpedit has some progress at the beginning, but i have now no more progress at all after doing this for 1 year In context ↗
  • CPAP · HelpedI'm currently trying CPAP at night ... but it does help to get stronger lungs In context ↗
  • HBOT (hyperbaric oxygen) · Helpedhyperbaric oxygen HBOT for 10 sessions after CPAP ... It took me 6 month to do both but it was really efficient for my lungs. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
November 2020COVID infection; long COVID began with painful breathing and waves of fatigueInitial infection on November 2020. In context ↗Moderate
6 months into long COVIDpainful breathing stoppedIt has stopped at 6 month LH. In context ↗Moderate
8 months into long COVIDbody drained, bedridden for a month, sleeping more than 15 hours a dayI was bedridden for a month, sleeping more than 15h a day. In context ↗Severe
18 months, around May 2022knew long COVID was over, could handle efforts without fatigueIt was 18 month for my first. In context ↗Mild
July 2022COVID reinfection triggered long COVID symptoms againNow i had Covid again two weeks ago and it has triggered some LC symptoms again In context ↗Mild
2023CPAP then 10 HBOT sessions strengthened his lungs; able to handle a normal work weekIt took me 6 month to do both but it was really efficient for my lungs. In context ↗MildCPAP and sleep apnoea treatment
March 2024far better, handling a normal week at his computer job, some bad days leftI still have some bad days but it's far better now. In context ↗Mild
September 2026sleep symptom gone after CPAP; lingering neurological symptoms and dizziness, no sportI went next to neurological symptoms (especially intrusive thoughts) and now, it is dizziness In context ↗MildCPAP and sleep apnoea treatment

Adverse events

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessWhen breathing was too pain full for me i used peppermint oil to get like one hour of peace. In context ↗
  • Post-exertional malaiseI still can't reach 10% of my previous sport level (500 m of swimming) without 1 week being Knocked out In context ↗
  • Sleep problemsI was bedridden for a month, sleeping more than 15h a day. In context ↗
  • Anxiety & low moodIt went from hard and painful breathing to PEM and intrusive thought. In context ↗
  • Heart symptoms & palpitationsheart palpitation In context ↗
  • POTS & dysautonomianow, it is dizziness In context ↗
  • Muscle weaknessmy muscles stay also weakenned In context ↗

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