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ME/CFS No benefit

CFS with brain fog and energy crashes, no improvement from Concerta

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Apr 2024
In their words
  • Condition: ME/CFSI tried Concerta for CFS and it didn't help any more than a couple cups of morning coffee would In context ↗
  • Now: No benefitI don't always have the energy to game, and if I do it too long my spoons can run out and I can crash ... with CFS brainfog it's much much harder to concentrate on it to analyze the board positions than it used to be In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user with CFS tried Concerta, which helped no more than a couple cups of morning coffee and brought an unbearable emotional crash each evening, so they stopped. Gaming, especially Street Fighter, was a happy diversion when energy allowed, though playing too long could use up their spoons and cause a crash. CFS brain fog made the board game Go much harder to concentrate on than before. No overall change in their illness was described.

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What they tried

Also tried

Their words about each treatment
  • Concerta · WorseI tried Concerta for CFS and it didn't help any more than a couple cups of morning coffee would, but unlike coffee the crash at the end of the day was unbearable In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—onset of CFS, already used to physical crashesI was already used to a physical crash In context ↗Not stated
2022-10-25tried Concerta, no benefit and an evening emotional crashI tried Concerta for CFS and it didn't help any more than a couple cups of morning coffee would In context ↗Moderate
2024-04-18still limited; games when energy allows and can crash afterwardsI don't always have the energy to game, and if I do it too long my spoons can run out and I can crash In context ↗Moderate

Adverse events

  • Methylphenidate (Ritalin, Concerta)“unlike coffee the crash at the end of the day was unbearable - I was already used to a physical crash but this was an emotional one- I felt inexplicably blue in a way I never had off of it” In context ↗ Mood or psychiatric effects

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseif I do it too long my spoons can run out and I can crash In context ↗
  • Brain fogunfortunately with CFS brainfog it's much much harder to concentrate on it In context ↗
  • Anxiety & low moodI felt inexplicably blue in a way I never had off of it In context ↗

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