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Long COVID Severe → relapsedIll 19 months before improving or writing

Long COVID that rarely left home, better on low-dose naltrexone, then relapsed

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
19 months
Last post
Jun 2025
In their words
  • Condition: Long COVIDSo I’ve had LC since Nov 2023 In context ↗
  • At worst: SevereI was at like 5% and now I’m like 60% In context ↗
  • Now: Relapsedthen I had a kid haha and I don’t sleep so I’ve regressed In context ↗
  • Began after: COVIDSo I’ve had LC since Nov 2023 In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on

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Summary

Lagoon 33314, a 28-year-old man in New York, fell ill with long COVID in November 2023; the first three months were a disaster and he rarely left his apartment, though he worked from home. Low-dose naltrexone, started around May 2024, brought slow gains after about five months, and he reached roughly 85% by 13 months while back in the office 4-5 days a week. After his child was born and he lost sleep, he regressed by 19 months.

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What they tried

Their words about each treatment
  • LDN · Helped a lotI started LDN, and it took like 5 months until I really noticed improvement in any way In context ↗
  • lions mane · HelpedFor me it only works for a week before I have to give it a tolerance break In context ↗
  • ashwagandha · HelpedRecently I started lions mane/ashwagandha supplements which helped me In context ↗
  • energy drinks (Ghost) · Helpedone thing that helps on top of that are energy drinks (only ghost energy drinks for me) In context ↗
  • sunlight · HelpedAfter the first morning there I immediately felt better, like 70% improved In context ↗
  • weed · HelpedWeed keeps me going In context ↗
  • kratom · Helpedtry kratom and weed at night, you won’t be better but it makes you happier In context ↗
  • caffeine · Worsein my early phases, caffeine was a problem for me In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
November 2023Long COVID began; first three months a disaster, rarely left his apartmentSo I’ve had LC since Nov 2023 and am a 28 year old male. The first three months were a disaster, I rarely left my apartment. In context ↗Severe
August 2024back in the office 4-5 days a week, baseline about 30%Since then I’ve started going into the office and built up to 4-5 days a week. ... my baseline is about 30%Moderate
13 months ingot to about 85% and was still improvingAfter about 13 months I got to like 85% and was really improving (improvement happens in waves for me, especially after LDN) In context ↗Near normalLow-dose naltrexone
2025, after his child was bornregressed after having a kid and losing sleepthen I had a kid haha and I don’t sleep so I’ve regressed In context ↗Not stated
June 202519 months in, regressed from his peak because of poor sleepI’m 19 months in ... I’ve regressed In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Brain fogMy brain fog has been the worst part, it hasn’t improved too much yet honestly. In context ↗
  • Sleep problemslong covid tries to mess with sleep quality In context ↗

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