ME/CFS
Mild → no benefitIll for 18 months
Constant exhaustion and weakness with ME/CFS, no relief from diet changes or vitamin D
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 18 months
- Last post
- Mar 2022
In their words
- Condition: ME/CFS
I checked the diagnostic criteria list as well as the resources given to check whether or not you have MS/CFS- I match all of them
In context ↗ - At worst: Mild
I’d get home and essentially have to lie down because I was too weak and tired to do anything
In context ↗ - Now: No benefit
I’m always exhausted, fatigued and nothing helps. ... no amount of caffeine helps.
- Began after: nothing they could name
I first noticed this when I would go to school, I’d get so exhausted from the day I’d get home and essentially have to lie down because I was too weak and tired to do anything.
In context ↗
Summary
At 16, about a year into constant exhaustion, the user described never fully waking, weakness so bad they once lay on the floor for three hours, headaches, sore throat and dizziness. School days left them needing to lie down, and morning workouts wiped them out for the rest of the day. Diet changes, vitamin D and caffeine pills did not help, and by March 2022 they were still in school all day with no relief.
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What they tried
Their words about each treatment
- changed my diet · No change
I’ve changed my diet quite a bit to help- it doesn’t
In context ↗ - vitamin D supplement · No change
I take a vitamin D supplement and it doesn’t help
In context ↗ - caffeine · No change
I drink coffee in the mornings and have recently tried caffeine pills at around noon to try to prevent PEM ... but no amount of caffeine helps
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | constant exhaustion began; school days left them needing to lie downI first noticed this when I would go to school, I’d get so exhausted from the day I’d get home and essentially have to lie down because I was too weak and tired to do anything.In context ↗ | Mild |
| mid-2021 | too weak to get up off the floor for 3 hoursonce I laid on the floor for 3 hours because I struggled so much to get upIn context ↗ | Mild |
| 2022-03-19 | still exhausted at school all day; caffeine gave no reliefI have school all day, but no amount of caffeine helpsIn context ↗ | Mild |
Symptoms mentioned
Brain fogFlu-like symptomsHeadaches & migraineMuscle weaknessPOTS & dysautonomiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I workout at night because if I do it in the morning I nearly physically can’t do anything the rest of the day
In context ↗ - Muscle weakness
there’s times I feel so weak I can’t move
In context ↗ - Sleep problems
I feel like I can never fully wake up and have a lot of grogginess that stretches the whole day
In context ↗ - Headaches & migraine
headache, sore throat, dizziness/mild confusion
In context ↗ - POTS & dysautonomia
dizziness/mild confusion
In context ↗