ME/CFS
Moderate → relapsed
Mostly in bed with ME/CFS, improved then crashed in hot weather
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2022
In their words
- At worst: Moderate
I still spent most of my day in the bed, but i wasn't overly sleepy and i went out with my parents every now and then.
In context ↗ - Now: Relapsed
i had a pretty good time from the beginning of June till my crash mentioned earlier.
In context ↗
Read from 2 of their posts and comments; links to the one this page draws on
Summary
An r/cfs user who spent most of the day in bed but had a better stretch from early June 2022, when they were less sleepy and went out with their parents now and then. A crash at the end of July 2022 in hot weather left them unable to breathe normally during the day. Their sleep schedule switched every couple of weeks. They had mostly avoided infections since 2019 through others masking and disinfecting, but got sick once when the mask mandate was lifted and their parents didn't listen.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| beginning of June 2022 | a pretty good stretch, though still most of the day in bedBut i had a pretty good time from the beginning of June till my crash mentioned earlier.In context ↗ | Moderate |
| end of July 2022 | crashed during hot weather, could not breathe normallyI had a crash in the end of July, i couldn't even breath normally during the day because it was so hot.In context ↗ | Severe |
| 2022-08-18 | most of the day in bed, occasional outings, sleep cycle switchingI still spent most of my day in the bed, but i wasn't overly sleepy and i went out with my parents every now and then.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
For me it switches every couple of weeks.
In context ↗ - Breathlessness
i couldn't even breath normally during the day because it was so hot
In context ↗