Housebound with ME/CFS, better on carnivore diet and fasting, then relapsed
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 19 months
- Last post
- Aug 2019
In their words
- Condition: ME/CFS
I first got CFS when I was 21 and it lasted 18 months.
In context ↗ - At worst: Moderate
I am housebound and while I am awake for about 12-13 hours of the day, instead of only 9-10 hours as it was before
In context ↗ - Now: Relapsed
I first got CFS when I was 21 and it lasted 18 months. And then I had a good couple of years where I felt great and was really active. Now I'm 27 and have had CFS for the second time for 19 months.
In context ↗
Read from 11 of their posts and comments; links to the 7 this page draws on
Summary
Bramble 47575 first fell ill with CFS at 21; it lasted 18 months and then went away on its own, followed by about three active years. It returned around age 25 with more pain, and by 2019 they were housebound, awake 12-13 hours a day. They credited a carnivore diet and fasting for feeling better than the year before, though still housebound, and reported food and fragrance intolerances.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- carnivore diet · Helped
I'm better now than I was last year and I attribute that to the carnivore diet and fasting.
In context ↗ - medications for pain · Worse
My doctor has put me on a few different things, but they just made me worse. They did nothing for the pain and would give me symptoms like nausea, vertigo, a feverish feeling and best of all, more fatigue!
In context ↗ - mindfulness meditation · Helped
For me, mindfulness meditation, talking to friends, and just sitting outside in the sun helps.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 21 | First bout of CFS began at age 21I first got CFS when I was 21 and it lasted 18 months.In context ↗ | Not stated | |
| 18 months later | First bout ended on its own; about three active years followedit lasted 18 months then went away on its own, I didn't do anything to make that happen. Had about three good years, I was super active and energeticIn context ↗ | Recovered | |
| about 2017-2018 | CFS returned with more pain and other problems; housebound, awake only 9-10 hours a dayThen nearly two years ago it came back with a vengeance and this time came a heap of other problems and more pain than before.In context ↗ | Moderate | |
| 2019 | Felt better than the year before on a carnivore diet and fasting, but still houseboundI'm better now than I was last year and I attribute that to the carnivore diet and fasting.In context ↗ | Moderate | Carnivore diet |
| 2019-08-16 | Still housebound, doing carnivore OMAD, awake 12-13 hours a dayI am housebound and while I am awake for about 12-13 hours of the day, instead of only 9-10 hours as it was beforeIn context ↗ | Moderate |
Adverse events
- “My doctor has put me on a few different things, but they just made me worse. They did nothing for the pain and would give me symptoms like nausea, vertigo, a feverish feeling and best of all, more fatigue!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Do you take anything for the pain and is it effective?
In context ↗ - Sleep problems
Before switching to the carnivore diet my circadian rhythm was a mess.
In context ↗ - Anxiety & low mood
What stopped me from ending it was reframing my life.
In context ↗
Ask Miruvor AI
Similar stories
-
Housebound with ME/CFS, improved on LDN and memantine then relapsed
After COVID in August 2024 they were housebound for months with severe GI flares, then fatigue, body and joint pain and brain fog. They credited low-dose naltrexone and memantine for lifting them from housebound to roughly 75–80% recovered, with semaglutide…
-
Housebound and in a wheelchair with long COVID, much better after leaving mould and Xolair
Bramble 45719 fell ill with long COVID in January 2022 and was housebound and in a wheelchair for months, with PEM, GI and mast-cell problems. A prednisone course briefly restored walking but faded; LDN, cannabis, fasting and a carnivore diet helped him…
-
Housebound and mostly in bed with ME/CFS, Abilify helped then relapse
A US software engineer who fell ill in 2010 at age 30 went from mild to severe after pushing himself while preparing to change jobs in 2017, ending up housebound and mostly in bed. Low-dose Abilify lifted him from severe to mild within weeks in 2020, but the…
-
Long COVID with brain fog, gut problems and pain; improved, then relapsed and housebound
A US man in his forties fell ill with long COVID in 2020, with gut problems, PEM, brain fog, MCAS and fibromyalgia-type pain. He improved about 90% over two years, then crashed back and was housebound for roughly eighteen months. Antihistamines, cromolyn,…