Very sick with long COVID for months, now somewhat better with time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 1 year
- Last post
- May 2022
In their words
- Condition: Long COVID
9 month long hauler here.
In context ↗ - At worst: Moderate
Before that I had to take a leave for 4 months I was in horrific shape.
In context ↗ - Now: Somewhat better
Some improvements but still affecting me daily and gets me down.
In context ↗ - Began after: COVID
I’m approaching my one year since infection.
Read from 16 of their posts and comments; links to the 14 this page draws on
Summary
A long COVID patient infected in mid-2021 was very sick for months and took 4.5 months off work before returning full time that December. They credit time for slow, month-to-month gains; alcohol flared their symptoms for a day and an IV vitamin drip for about two days. In April 2022 three days of maraviroc and pravastatin caused a big step back. By May 2022 they worked and functioned but tired fast, legs weakening and malaise setting in after exertion.
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What they tried
What they credit
Also tried
Their words about each treatment
- Wellbutrin · Not said
I’ve been on Wellbutrin 150 XL for several months now also.
In context ↗ - NAC · Not said
I was doing 600mg a day for month and a half or so. Not sure if it made a difference
In context ↗ - creatine · Helped
Recently adding creatine and beet root powder. Have had a couple decent days.
In context ↗ - beet root powder · Helped
I’ve been supplementing creatine and beet root powder for a couple weeks few weeks. I’ve had some stronger morning wood at times.
In context ↗ - light resistance training · Not said
Had a little better light resistance training work out yesterday.
In context ↗ - vitamin drip · Worse
I did a vitamin drip and felt like ass for two days after.
In context ↗ - avoiding sugar, alcohol and coffee · Not said
I stay away from sugar and alcohol too.
In context ↗ - maraviroc · Worse
I started the two meds a few days ago and honestly feel worse
In context ↗ - pravastatin · Worse
Now I don’t know which one really is causing this horrible flare up.
In context ↗ - Time · Helped
Time I suppose. Thrown money at just about everything.
In context ↗
Approaches: Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| May 2021 | COVID-19 infection9 month long hauler here. Beginning illness I was very sick for a long time.In context ↗ | |
| summer 2021 | pushed through and broke down, took 4.5 months off workI drove myself into the ground first 3 months. So bad I broke down and couldn’t take trying to push through anymore.In context ↗ | |
| December 2021 | back to full-time workI’ve been working full time again since December.In context ↗ | Time and spontaneous remission |
| February 2022 | felt worse for two days after an IV vitamin dripI did an IV drip and felt worse like ass for about 2 days.In context ↗ | |
| March 2022 | flared after a few beers at a family gatheringI felt worse as the night went on and like ASS the entire next day. Flared up everything.In context ↗ | |
| April 2022 | big step back after three days of maraviroc and pravastatinHad a big step back recently after trying new meds. Regret it. Trying to get back to previous baseline now.In context ↗ | Maraviroc (Selzentry) |
| May 2022 | functioning but still limited day to dayI function but I want that turbo boost back.In context ↗ |
Adverse events
- IV vitamins and Myers cocktail“I did a vitamin drip and felt like ass for two days after. Not sure why. Messed with my immune system? And put it in attack.” In context ↗ Made symptoms worse
- Maraviroc (Selzentry)“Symptoms are more head brain pressure fog, more fatigue in legs than normal and off balance feeling, feeling more malaise than normal.” In context ↗ Made symptoms worse
- Pravastatin (Pravachol)“I started the two meds a few days ago and honestly feel worse ... Now I don’t know which one really is causing this horrible flare up.” Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my body is just zapped of energy. Muscles wear out so fast, legs get weak and the malaise sets in
In context ↗ - Brain fog
more head brain pressure fog
In context ↗ - Muscle weakness
Muscles wear out so fast, legs get weak
In context ↗ - Anxiety & low mood
My mood was insanely low like a different person.
In context ↗ - POTS & dysautonomia
off balance feeling
In context ↗
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